Transcript:

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I am so glad that you’re here and I’m so

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glad that I’m here welcome to the

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gluten-free you and me podcast where we

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learn and navigate and simplify our

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lives together in this gluten filled

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world today we are covering everything

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about going to college with celiac

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disease or if any of you out there who

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have any food restricted diets this

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episode is going to help you

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I have Clayton here now I have spent

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some serious time with this boy and he

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is phenomenal he’s making such an impact

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on the world and I love it and I’m

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honored that he’s our guest today you’re

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gonna just love the content that he

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shares the positivity he brings and all

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of his tips and tricks so with that

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being said I want to give the review of

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the week and today the winner is lomi pi

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I love that ello mie piee

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and this is what she had to say if

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you’re someone who has been a celiac for

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a short or a long time this is the place

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for you

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I was diagnosed with celiac a little

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over ten years

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when there was very little common

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awareness about celiac disease and

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people with severe gluten issues I’ve

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navigated this road for quite a while

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but every day quarrel through her social

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media outlets teaches me things I didn’t

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know and provides new information and

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new ways of helping others know about my

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condition thank you so much for

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listening to your calling and putting

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something so wonderful out there for all

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of us this gets me because you guys this

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is why I’m doing it i’m so grateful let

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me pie you are just one a gluten free

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guide that i’m gonna email you so email

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me at info at serving celiacs calm and I

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will send that right over because yes no

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matter if you’ve been putting free for

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five days or five years or 50 years we

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all need help and support and so this

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guide is awesome and I can’t wait for

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you to get your hands on it so I’m kind

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over a hundred and twenty five gluten

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free items that by just ingredients and

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I compiled together to bring to you the

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best and cleanest resource we could all

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right everyone today I am here with an

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amazing influencer Clayton college and

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celiac how you doing I need like this

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drumroll I need like this big thing cuz

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this is a big deal that you’re here

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today talking thank you so Clayton I

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want you to introduce yourself tell

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everybody a little bit about who you are

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and what you do and why you are College

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and celiac alright so I haven’t been an

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influencer for long that’s kind of a new

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title for me but my name is Clayton I am

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college and celiacs and I’m gonna be a

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sophomore in college this upcoming fall

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semester I was first diagnosed my senior

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year of high school so only about two

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years being gluten-free 100% but I’m

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here and I really thought that you know

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the thing that got me through after I

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was diagnosed was everyone else

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their story and I thought if I could

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give back to people that were once in my

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shoes by sharing my story I thought we

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know what better way to give back and

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just create this platform in this thing

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that I can share with other people I

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love that about you

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incredible because you’re like in it

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you’re in it right now in college so

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when you speak it’s like you’re speaking

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right with us I know oh yeah I’m always

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in present tense that’s the thing I’m

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always in present tense because it’s

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always just coming at me right now you

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know yeah you’re like this is what you

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don’t do so you help everyone else

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eliminate though what you’re not

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supposed to do which is blessing good

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okay so you’ve been gluten-free for two

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years now yes how is that getting that

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diagnosis um I actually had a memory

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pop-up just the other day it’s been

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about two years since my symptoms really

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kind of turned on I was at a basketball

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camp and I just thought it was a stomach

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flu you know I was just down I wasn’t

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performing as well and I you know my

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stomach just hurt it was sick whatever

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and then you know after a few months

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went by in the stomach flu I thought

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never went away I was like Oh something

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is really wrong so you know once we got

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the diagnosis it was you know I’m very

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blessed because it was much faster than

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a lot of people’s you know you hear the

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horror stories up good you know being 10

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15 20 years that they go and they’re

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sick and they’re you know just having a

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terrible time for a really long time but

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I was you know one of the lucky ones I

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say because it only took a few months

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and whenever we actually went in for

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like the preliminary testings

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celiac screening was on the preliminary

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testing so I’m very thankful for that

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and that I had a doctor that was

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educated you know what he was doing that

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is incredible yeah you don’t hear that

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very often no exactly the reverse we’re

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like pleading can you just test that

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that is huge so has that doctor that you

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went to has he seen a lot of people with

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celiac disease is that how or it was

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just his panel that he normally does and

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he I feel like there’s a little bit of

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fact that I had some of the you know

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very generic symptoms you know it was

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after I would eat it would be you know

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the stomach issues the bathroom issues

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those things but I feel like he

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definitely is I was lucky that my doctor

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was one of those that tries to stay on

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trend if that makes any sense like yeah

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every time we would talk to him you know

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even if it was just a checkup he would

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say well in this you know I read this

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the other day or I heard about this the

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other day from one of my doctor friends

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so you know the more that I feel like

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you have a doctor that’s kind of you

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know in the loop

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in the medical world and on top of

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things that you know it might be easier

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for you to advocate for yourself too

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because if they you know if it’s on

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their radar then it’s kind of easier to

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get it figured out that is really good

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and that’s a really good point to bring

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up I know that there’s a lot of people

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who feel really frustrated with their

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doctors but doing some research

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beforehand finding a younger doctor may

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be in your benefit or one that’s willing

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to learn and grow and listen I work for

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an OBGYN and I’m like I have the best

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doctor that I work for because he’s a

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listener and I’m like you’re not gonna

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find a better OB because he will sit

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down and listen to you that’s it you

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know yes I think that that’s what it’s

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so many um we get a runaround because of

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that fact that some are just fixed in

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more of an older traditional way and no

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celiac disease is up and coming and more

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con than ever so awesome okay so that

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means you were you said you were your

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senior year or is it easier

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in between junior and senior year yeah

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it was in the summer time okay so then

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you play basketball yes I do and so tell

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me like what emotions were going where

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you going through when you got diagnosed

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it was super super challenging and so

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frustrating

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because of the fact I was in summer

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league so you know summertime for

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basketball players is whenever you’re

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you know doing all your fundamental

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workouts and lifting weights and running

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and it’s just your time that you just

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focus on getting better

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for the winter season so it was so

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challenging to you know show up to

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practice you know I still showed up

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every day but I was getting to the point

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where I would show up and you know my

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body just want to let me participate

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like I would try every day I would try

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it was pretty bad there for a while too

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and this is kind of embarrassing but

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after my diagnosis you know it takes a

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while to heal but you know I was like

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well now I know the issue so I’m gonna

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be better right away right so I you know

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started going full force of practice and

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stuff and then I would just be you know

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basically just dry keeping and running

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and just oh it’s bad there for a while

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but I really think that you know those

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curveballs that a kind of face kind of

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helped me you know navigate and kind of

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learn about my body and the healing

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process and it kind of tell me to do

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more research on my own about the

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disease than what my doctor and

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dietician was telling me and I think

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that’s important for a lot of people to

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kind of you know share your story and

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hear other people’s stories because I

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feel like everyone’s so different in the

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spectrum of celiac disease is so

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different for everybody because you know

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some people the way my doctor put it to

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me he acted like internally it would

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take longer to heal but I didn’t realize

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that I would still be having symptoms

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for a long time and that’s frustrating

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because you’re like ah I’m doing

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supposed to be doing yeah okay so how is

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it socially I mean that’s like that’s a

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huge time in your life okay so socially

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it is a challenge because of the fact

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that not everyone knows about celiac

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disease yet and it doesn’t have as much

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awareness and but I think advocating for

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yourself and just you know kind of

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having that sit-down conversation with

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your friends like this is what it is

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this is what I can and can’t do be

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patient with me please you know those

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type of things are so important and then

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it makes social situation that much

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easier to navigate because if they’re

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you know informed about it they can

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actually advocate for you when you’re

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not around so there’s been so many times

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when I’m at

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or something in all order and I’m so bad

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and this is something that I need to get

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way better about but it I’m bad about

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always telling them I have a gluten

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allergy you know it’s just easy to say

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allergy right then give me the whole

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spiel but sometimes I’ll just ordered

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the gluten-free option and not even add

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that little bit because we’re actually

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whenever I was on vacation a few months

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ago

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you know I ordered and then my friend

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looks at me and then he looks at the

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waiter and he goes and he has a gluten

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allergy and by the way that’s important

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and they wrote so it’s just finding

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those friends that you know are super

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concerned about your needs and your

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safety and your health is so important

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and that’s one thing that I try to

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advocate on top is that yes that is huge

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and I think wow that’s really impressive

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because I feel and this is totally

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stereotyping here but I feel like for

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for guys it’s a lot different to like

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sit down and have a discussion or be

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like hey these are my feelings like

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really it’s just not as common yeah I

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think that’s wonderful that you have

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friends that you can be that way with

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yeah yeah and it’s not and it doesn’t

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always go like that I’ll just be honest

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cuz like especially whenever I first

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like got on campus as a college

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basketball player I didn’t even tell my

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coach that I had any issues until the

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day of move in whenever he came down and

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he was like oh I’m so glad to hear bla

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bla I hope you get moved in and he’s

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like we’re gonna go eat later bla bla

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bla and I was like well actually I meant

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to tell you this awhile ago

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but here’s the thing so I don’t always

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do it the way I should because I think

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you’re right I think guys and that’s one

00:11:24.470 –> 00:11:28.760
thing I do struggle with is I want to

00:11:26.630 –> 00:11:30.770
just you know act like nothing’s wrong

00:11:28.760 –> 00:11:33.590
and I don’t have issues and I don’t have

00:11:30.770 –> 00:11:35.150
to be different than other people but

00:11:33.590 –> 00:11:36.530
it’s so important to have those

00:11:35.150 –> 00:11:38.390
conversations and to make that

00:11:36.530 –> 00:11:41.600
connection and kind of the word I use

00:11:38.390 –> 00:11:42.920
kind of get over yourself and just do it

00:11:41.600 –> 00:11:45.560
because it’s for your own good

00:11:42.920 –> 00:11:49.070
is one of those things right yeah you

00:11:45.560 –> 00:11:50.270
can’t you can’t not bring this up yes

00:11:49.070 –> 00:11:52.670
yeah to some

00:11:50.270 –> 00:11:56.240
you’re gonna be with all the time like

00:11:52.670 –> 00:11:57.710
your basketball coach yes so hey we’ve

00:11:56.240 –> 00:11:59.720
kind of transition into your college

00:11:57.710 –> 00:12:01.580
life now now how hard was it we have a

00:11:59.720 –> 00:12:04.070
lot of moms out there listening to this

00:12:01.580 –> 00:12:06.740
today and I want to know how hard was it

00:12:04.070 –> 00:12:08.690
for your mom to send you away to college

00:12:06.740 –> 00:12:13.190
and not like he’d be right closer I had

00:12:08.690 –> 00:12:14.840
a community college Oh mom I mean for

00:12:13.190 –> 00:12:16.400
the most part she was great I will say

00:12:14.840 –> 00:12:20.180
that she was great about the whole thing

00:12:16.400 –> 00:12:22.280
she definitely worried a lot in the you

00:12:20.180 –> 00:12:24.830
know in the weeks right after my

00:12:22.280 –> 00:12:27.470
diagnosis I think and I’ve heard this

00:12:24.830 –> 00:12:28.700
from a lot of moms a lot of people have

00:12:27.470 –> 00:12:30.770
you know reached out to me with this

00:12:28.700 –> 00:12:34.030
exact same issue and I was so shocked I

00:12:30.770 –> 00:12:37.250
figured it just of me and my mom thing

00:12:34.030 –> 00:12:39.200
mom and I were bloody headed so bad

00:12:37.250 –> 00:12:41.480
after my diagnosis it was kind of

00:12:39.200 –> 00:12:43.190
ridiculous it was just you know just the

00:12:41.480 –> 00:12:45.710
fact that I was angry at the world a

00:12:43.190 –> 00:12:47.510
little bit and she was frustrated but

00:12:45.710 –> 00:12:49.850
more than anything she just wanted you

00:12:47.510 –> 00:12:51.890
know to take the pain away and to make

00:12:49.850 –> 00:12:54.470
me not you know make me not have any

00:12:51.890 –> 00:12:57.140
issues so bad and you know all these

00:12:54.470 –> 00:12:58.430
emotions were flying around because I

00:12:57.140 –> 00:13:01.130
remember one time we were in the kitchen

00:12:58.430 –> 00:13:02.780
and I was like eating I don’t know my

00:13:01.130 –> 00:13:05.540
fifth bowl of Cheerios or something of

00:13:02.780 –> 00:13:07.100
the day she was like asking me like what

00:13:05.540 –> 00:13:12.830
I wanted to eat I’m just like I don’t

00:13:07.100 –> 00:13:15.530
know what I can we were just going at it

00:13:12.830 –> 00:13:17.480
but you know I think some of that was

00:13:15.530 –> 00:13:19.970
actually kind of healthy in navigating

00:13:17.480 –> 00:13:21.680
the relationship between you know your

00:13:19.970 –> 00:13:23.170
parents and celiac disease are you

00:13:21.680 –> 00:13:25.610
having a child with celiac disease

00:13:23.170 –> 00:13:27.290
because you know after we had those

00:13:25.610 –> 00:13:30.020
conversations and did that research

00:13:27.290 –> 00:13:31.550
together I think she was a lot more okay

00:13:30.020 –> 00:13:33.710
sending me away to college because she

00:13:31.550 –> 00:13:35.930
knew I was gonna stick to my diet she

00:13:33.710 –> 00:13:38.470
was gonna try to do what was best for me

00:13:35.930 –> 00:13:40.940
and my health so I think she wasn’t as

00:13:38.470 –> 00:13:43.400
president swimming away because you know

00:13:40.940 –> 00:13:45.920
she had seen us go through all of that

00:13:43.400 –> 00:13:47.690
together but at the same time she

00:13:45.920 –> 00:13:49.190
definitely worried a lot I will I won’t

00:13:47.690 –> 00:13:52.190
let her off the line she definitely did

00:13:49.190 –> 00:13:53.630
worry a lot I’d get lots of texts and

00:13:52.190 –> 00:13:55.460
lots of phone calls about what I was

00:13:53.630 –> 00:13:58.520
eating and how I was eating and stuff

00:13:55.460 –> 00:14:00.200
like that and I bet she’s so proud of

00:13:58.520 –> 00:14:02.630
you now seeing what you’re doing

00:14:00.200 –> 00:14:04.670
platform and everything I just I think

00:14:02.630 –> 00:14:07.970
that that is like proud mom moment to

00:14:04.670 –> 00:14:10.700
the fullest and you failed to mention

00:14:07.970 –> 00:14:13.670
that like you’re a cook you are like a

00:14:10.700 –> 00:14:16.730
little rough here so that helps a lot

00:14:13.670 –> 00:14:18.199
you love to cook so that’s because we

00:14:16.730 –> 00:14:22.370
all know that we have to we have to

00:14:18.199 –> 00:14:25.880
learn that skill yeah if you because you

00:14:22.370 –> 00:14:27.290
have to learn to yes it kind of goes

00:14:25.880 –> 00:14:29.360
hand in hand so I think that that’s

00:14:27.290 –> 00:14:33.110
incredible so do you have any tips for

00:14:29.360 –> 00:14:36.139
any any other moms out there I would

00:14:33.110 –> 00:14:40.760
definitely say just probably you know

00:14:36.139 –> 00:14:42.980
teach your child to cook a few meals you

00:14:40.760 –> 00:14:44.420
know don’t make it like to the point

00:14:42.980 –> 00:14:45.889
where you’re just like here I’m gonna

00:14:44.420 –> 00:14:47.480
teach you this but try to just be like

00:14:45.889 –> 00:14:49.250
have them around the kitchen or

00:14:47.480 –> 00:14:51.199
something and so they kind of pick up on

00:14:49.250 –> 00:14:52.519
those things because I know that’s the

00:14:51.199 –> 00:14:54.320
thing with me just being around the

00:14:52.519 –> 00:14:56.300
kitchen a lot when like you know mom or

00:14:54.320 –> 00:14:58.130
dad would be cooking that I picked up

00:14:56.300 –> 00:15:00.529
that’s where I learned to cook was just

00:14:58.130 –> 00:15:02.810
watching them through the years so just

00:15:00.529 –> 00:15:04.760
you know kind of showing them how to

00:15:02.810 –> 00:15:06.589
cook some staple meals or whatever it

00:15:04.760 –> 00:15:09.019
may be what you know cooking the meals

00:15:06.589 –> 00:15:10.760
that they like that would be one of the

00:15:09.019 –> 00:15:13.550
tips and the other tip would definitely

00:15:10.760 –> 00:15:15.649
just don’t worry too much because at the

00:15:13.550 –> 00:15:17.750
end of the day like we’re gonna you know

00:15:15.649 –> 00:15:18.980
especially college students like we’re

00:15:17.750 –> 00:15:20.540
getting to that point where we’re

00:15:18.980 –> 00:15:23.870
learning how important making our own

00:15:20.540 –> 00:15:25.610
decisions are so and I actually had

00:15:23.870 –> 00:15:28.910
someone reach out to me one time that

00:15:25.610 –> 00:15:30.560
said you know her child was to the point

00:15:28.910 –> 00:15:32.390
where he was so frustrated that he was

00:15:30.560 –> 00:15:34.399
just you know after he moved out he was

00:15:32.390 –> 00:15:36.649
gonna not even gluten-free anymore and

00:15:34.399 –> 00:15:39.470
this and that and what I finally had to

00:15:36.649 –> 00:15:41.000
you know tell her was he will get to the

00:15:39.470 –> 00:15:42.920
point where he kind of goes through the

00:15:41.000 –> 00:15:45.110
school of hard knocks and if he choose

00:15:42.920 –> 00:15:46.850
to do that he’ll definitely wish he had

00:15:45.110 –> 00:15:49.459
no because he’s gonna go through all the

00:15:46.850 –> 00:15:52.430
pain and all the suffering of eating you

00:15:49.459 –> 00:15:54.019
know gluten when he shouldn’t be and I

00:15:52.430 –> 00:15:57.470
feel like that’s you know with any

00:15:54.019 –> 00:15:59.449
situation it’s not just celiac students

00:15:57.470 –> 00:16:02.240
eating gluten it’s you know making bad

00:15:59.449 –> 00:16:04.100
choices in there too absolutely

00:16:02.240 –> 00:16:06.019
absolutely and there’s even some that

00:16:04.100 –> 00:16:09.440
don’t have physical symptoms and so they

00:16:06.019 –> 00:16:12.079
don’t know but over time it’s gonna

00:16:09.440 –> 00:16:13.250
catch up to them because we know how

00:16:12.079 –> 00:16:15.560
autoimmune disease

00:16:13.250 –> 00:16:17.360
his work and once you have one you’re

00:16:15.560 –> 00:16:20.000
very susceptible to having many others

00:16:17.360 –> 00:16:22.640
and so it it is a school of hard knocks

00:16:20.000 –> 00:16:24.200
and we all have to make our own choices

00:16:22.640 –> 00:16:26.240
you know something that I try to do with

00:16:24.200 –> 00:16:28.490
my daughter Chanel when she was first

00:16:26.240 –> 00:16:31.780
diagnosed I mean it was hard she was

00:16:28.490 –> 00:16:35.600
two-and-a-half and I just remember I

00:16:31.780 –> 00:16:36.620
just kept giving her options and people

00:16:35.600 –> 00:16:38.120
were like how are you gonna give her an

00:16:36.620 –> 00:16:41.690
option I’m like because you can kind of

00:16:38.120 –> 00:16:44.150
do a mind trick game and I would say

00:16:41.690 –> 00:16:46.370
well you can you can eat this but you’re

00:16:44.150 –> 00:16:48.830
probably gonna be really sick or you’re

00:16:46.370 –> 00:16:51.320
gonna throw up after it it’s your choice

00:16:48.830 –> 00:16:53.930
and let me tell you because it was her

00:16:51.320 –> 00:16:56.150
choice she never fought me on it and she

00:16:53.930 –> 00:16:58.400
appreciated that fact and I think that

00:16:56.150 –> 00:17:01.430
we all need that agency I don’t care if

00:16:58.400 –> 00:17:04.540
you’re 2 or you’re 92 like we all need

00:17:01.430 –> 00:17:06.920
to feel like this is our choice and so

00:17:04.540 –> 00:17:08.449
cutting that that’s hard as a parent oh

00:17:06.920 –> 00:17:10.220
yeah I can tell you from my standpoint

00:17:08.449 –> 00:17:12.620
like because if my daughter would have

00:17:10.220 –> 00:17:14.990
said oh I’m just gonna eat it I really

00:17:12.620 –> 00:17:17.329
know what I was I probably would have

00:17:14.990 –> 00:17:19.430
just helped her pick up her throw up and

00:17:17.329 –> 00:17:22.100
we would learn the next time you know

00:17:19.430 –> 00:17:24.290
like we all have to learn and so it’s

00:17:22.100 –> 00:17:25.910
just sometimes you have to just let you

00:17:24.290 –> 00:17:28.010
fly and so especially going off to

00:17:25.910 –> 00:17:29.480
college I I can’t imagine what that was

00:17:28.010 –> 00:17:31.190
like for your mom or for others out

00:17:29.480 –> 00:17:37.070
there I’m gonna be there probably sooner

00:17:31.190 –> 00:17:39.290
that I really feel yes okay so you also

00:17:37.070 –> 00:17:40.850
mentioned that you kind of did some

00:17:39.290 –> 00:17:42.290
research on your own you had a doctor

00:17:40.850 –> 00:17:43.940
you had a dietitian which was wonderful

00:17:42.290 –> 00:17:45.800
for you but you needed to do some

00:17:43.940 –> 00:17:48.080
research on your own what were some

00:17:45.800 –> 00:17:50.930
resources or organizations that helped

00:17:48.080 –> 00:17:52.910
you along that way for sure I’m one of

00:17:50.930 –> 00:17:57.140
the organizations that I first got in

00:17:52.910 –> 00:17:59.120
contact with was the stepping on celiac

00:17:57.140 –> 00:18:01.850
group out of Kansas City and so what

00:17:59.120 –> 00:18:05.060
they are they’re a group that was formed

00:18:01.850 –> 00:18:06.200
I think three years ago now I probably

00:18:05.060 –> 00:18:09.340
should have got all the facts in front

00:18:06.200 –> 00:18:11.540
of me before I came on here

00:18:09.340 –> 00:18:14.450
so what it was is a group of moms

00:18:11.540 –> 00:18:16.310
basically and you know very similar to

00:18:14.450 –> 00:18:17.960
every mom that has a child diagnosed

00:18:16.310 –> 00:18:19.760
with celiac disease they just want to

00:18:17.960 –> 00:18:21.560
help I just want to find a cure they

00:18:19.760 –> 00:18:22.860
just want to take the pain away they

00:18:21.560 –> 00:18:25.770
just want to do whatever they can

00:18:22.860 –> 00:18:29.549
make it better when it was was a mom who

00:18:25.770 –> 00:18:31.710
you know form this 5k fundraiser to

00:18:29.549 –> 00:18:34.890
raise money for celiac disease but she

00:18:31.710 –> 00:18:36.570
didn’t realize maybe she did but at the

00:18:34.890 –> 00:18:40.679
time what she was doing was creating

00:18:36.570 –> 00:18:42.299
this basically this community for people

00:18:40.679 –> 00:18:44.090
that have celiac disease or children

00:18:42.299 –> 00:18:46.620
with celiac disease to all come together

00:18:44.090 –> 00:18:49.679
for this fundraiser and into this huge

00:18:46.620 –> 00:18:51.720
event in Kansas City and theirs vendors

00:18:49.679 –> 00:18:53.820
and there’s looting free food and it’s

00:18:51.720 –> 00:18:56.640
just all these people can connect with

00:18:53.820 –> 00:18:59.400
each other and just having that space

00:18:56.640 –> 00:19:00.900
and having that community was huge for

00:18:59.400 –> 00:19:02.880
me especially you know after being

00:19:00.900 –> 00:19:05.640
diagnosed just a year ago is whenever I

00:19:02.880 –> 00:19:07.410
first got connected with them and

00:19:05.640 –> 00:19:09.720
actually what it was there was like a

00:19:07.410 –> 00:19:12.809
little handout and a gluten-free Bakery

00:19:09.720 –> 00:19:14.940
that was kind of local and so I picked

00:19:12.809 –> 00:19:17.190
it up not having any idea where it would

00:19:14.940 –> 00:19:19.230
take me in the next year and a half but

00:19:17.190 –> 00:19:21.059
I you know I looked them up on Facebook

00:19:19.230 –> 00:19:23.250
added them there and they were looking

00:19:21.059 –> 00:19:25.500
for a photographer and I do photography

00:19:23.250 –> 00:19:26.700
on the side so it’s like you know reach

00:19:25.500 –> 00:19:28.559
out to them and I was like for sure I

00:19:26.700 –> 00:19:30.090
was like you know I’d love to shoot for

00:19:28.559 –> 00:19:33.299
you guys I’d love to help out whatever I

00:19:30.090 –> 00:19:35.790
can and so that was you know almost a

00:19:33.299 –> 00:19:37.679
year ago now on the fall and then I

00:19:35.790 –> 00:19:40.169
didn’t realize that you know now I would

00:19:37.679 –> 00:19:42.450
be you know on the volunteer team that

00:19:40.169 –> 00:19:44.580
you know helps plan it and helps do all

00:19:42.450 –> 00:19:46.860
these other things so but really the

00:19:44.580 –> 00:19:49.110
biggest part about it was is just having

00:19:46.860 –> 00:19:50.730
that community and having that almost

00:19:49.110 –> 00:19:52.140
like a family that you know everybody

00:19:50.730 –> 00:19:54.299
has celiac disease and they all know

00:19:52.140 –> 00:19:56.070
where you’re coming from so I feel like

00:19:54.299 –> 00:19:57.929
that made me so much more confident in

00:19:56.070 –> 00:19:59.400
it just knowing how many other people

00:19:57.929 –> 00:20:00.630
were out there and seeing these people

00:19:59.400 –> 00:20:02.910
face-to-face and hearing their

00:20:00.630 –> 00:20:05.549
challenges just made it so much easier

00:20:02.910 –> 00:20:06.540
than just doing it by yourself that is

00:20:05.549 –> 00:20:07.980
incredible

00:20:06.540 –> 00:20:09.660
you know you think like what are the

00:20:07.980 –> 00:20:11.610
chances that you’re in that bakery and

00:20:09.660 –> 00:20:13.980
you saw that fire that day and it had

00:20:11.610 –> 00:20:15.660
that you know it’s just exactly and if

00:20:13.980 –> 00:20:19.020
they needed a photographer like that’s

00:20:15.660 –> 00:20:20.610
just that’s incredible you were totally

00:20:19.020 –> 00:20:22.440
just meant to link up with them and I

00:20:20.610 –> 00:20:27.179
love that and I love when people are

00:20:22.440 –> 00:20:29.820
doing something about making change just

00:20:27.179 –> 00:20:34.770
not only their lives but to help others

00:20:29.820 –> 00:20:35.430
and I think that that’s so crazy because

00:20:34.770 –> 00:20:37.500
from

00:20:35.430 –> 00:20:39.809
you know the first year it was just a 5k

00:20:37.500 –> 00:20:42.330
in Kansas City and this year it grew to

00:20:39.809 –> 00:20:43.590
three cities it was in Philadelphia and

00:20:42.330 –> 00:20:45.360
it’s gonna be in Dallas and it’s gonna

00:20:43.590 –> 00:20:47.430
be in Kansas City again this fall but

00:20:45.360 –> 00:20:48.960
it’s just it’s just growing and growing

00:20:47.430 –> 00:20:51.030
because there’s so many people out there

00:20:48.960 –> 00:20:52.320
that want to have this event and to

00:20:51.030 –> 00:20:53.820
bring all these people together to raise

00:20:52.320 –> 00:20:55.559
money and especially awareness for

00:20:53.820 –> 00:20:57.540
celiac disease so it’s so cool that I

00:20:55.559 –> 00:20:59.730
was able to be a part of it you know in

00:20:57.540 –> 00:21:02.070
the growing years so that’s another

00:20:59.730 –> 00:21:04.320
thing that I’m super excited about that

00:21:02.070 –> 00:21:06.150
is awesome I love that we need one in

00:21:04.320 –> 00:21:09.410
California so make that one happen okay

00:21:06.150 –> 00:21:15.179
okay I’ll show up with my posse

00:21:09.410 –> 00:21:17.100
my four little kids this podcast is

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sponsored and brought to you by the

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back to our podcast message

00:22:08.780 –> 00:22:12.000
[Music]

00:22:09.990 –> 00:22:14.940
let’s talk about your getting into

00:22:12.000 –> 00:22:18.270
college and really break that process

00:22:14.940 –> 00:22:19.830
down as far as like who do you call who

00:22:18.270 –> 00:22:22.440
do you contact like how do you know if

00:22:19.830 –> 00:22:25.169
your school is celiac friendly or you

00:22:22.440 –> 00:22:26.730
know gluten free 100% or how what

00:22:25.169 –> 00:22:29.669
measures do you take what does that look

00:22:26.730 –> 00:22:33.240
like okay so going into college I

00:22:29.669 –> 00:22:35.940
actually had no idea how I was gonna do

00:22:33.240 –> 00:22:38.340
this I really didn’t but when I got to

00:22:35.940 –> 00:22:40.799
campus the first person and it’s a super

00:22:38.340 –> 00:22:42.779
great place to start almost every school

00:22:40.799 –> 00:22:45.570
has like a student life department or

00:22:42.779 –> 00:22:46.620
something very similar so I set up a

00:22:45.570 –> 00:22:50.130
meeting with the Director of Student

00:22:46.620 –> 00:22:50.640
Life and she put me you know semi in the

00:22:50.130 –> 00:22:52.470
right direction

00:22:50.640 –> 00:22:53.880
so I would you know have everybody

00:22:52.470 –> 00:22:56.789
that’s going to college if you don’t

00:22:53.880 –> 00:22:59.730
know where to start start there but then

00:22:56.789 –> 00:23:02.610
I quickly learned that especially for

00:22:59.730 –> 00:23:04.039
people with celiac disease a DA which

00:23:02.610 –> 00:23:08.039
chance for Americans with this

00:23:04.039 –> 00:23:09.870
Disability Act what that is is most

00:23:08.039 –> 00:23:12.059
college I think actually all college

00:23:09.870 –> 00:23:15.000
campuses have an ad a wreck

00:23:12.059 –> 00:23:16.980
so what their job is to do is just you

00:23:15.000 –> 00:23:18.149
know students with disabilities to make

00:23:16.980 –> 00:23:21.240
sure that they’re getting the best

00:23:18.149 –> 00:23:23.010
college experience that came possible so

00:23:21.240 –> 00:23:26.279
just recently actually I think the last

00:23:23.010 –> 00:23:28.980
five years or less celiac disease has

00:23:26.279 –> 00:23:31.590
fallen under this category so now the

00:23:28.980 –> 00:23:33.750
rep on campus is there to also help me

00:23:31.590 –> 00:23:36.690
make sure that I have the best college

00:23:33.750 –> 00:23:39.330
experience and I do know I’m eating what

00:23:36.690 –> 00:23:41.070
I can and whatever it may look like so

00:23:39.330 –> 00:23:43.110
for me you know we sat down we had this

00:23:41.070 –> 00:23:45.510
meeting I was super lucky that my rep

00:23:43.110 –> 00:23:48.149
was pretty knowledgeable about celiac

00:23:45.510 –> 00:23:51.299
disease so what we decided you know and

00:23:48.149 –> 00:23:53.520
we create our own plan so what my plan

00:23:51.299 –> 00:23:54.899
looked like was I was set up to have a

00:23:53.520 –> 00:23:57.299
double room so I was gonna have a

00:23:54.899 –> 00:23:59.640
roommate we decided that would be since

00:23:57.299 –> 00:24:01.140
I’m very sensitive you know I get break

00:23:59.640 –> 00:24:03.330
out on my skin when I come in contact

00:24:01.140 –> 00:24:05.760
and I’m super too susceptible to cross

00:24:03.330 –> 00:24:09.120
contact so what we decided we would do

00:24:05.760 –> 00:24:11.970
is put me in a single room so I actually

00:24:09.120 –> 00:24:13.950
got my own room and then of course it

00:24:11.970 –> 00:24:16.970
was the expenses were cut because I was

00:24:13.950 –> 00:24:16.970
through the 88 plan

00:24:17.020 –> 00:24:23.260
was had a sit-down meeting with the food

00:24:19.840 –> 00:24:24.490
service company you know her and I we

00:24:23.260 –> 00:24:26.800
just explained it to them we’re like

00:24:24.490 –> 00:24:28.120
this is what celiac disease is this is

00:24:26.800 –> 00:24:30.910
why it’s so important this is what

00:24:28.120 –> 00:24:32.710
lutein is and then basically at the end

00:24:30.910 –> 00:24:34.000
of this meeting I just told them I was

00:24:32.710 –> 00:24:35.940
like so if you guys think you could

00:24:34.000 –> 00:24:39.460
provide food safe enough for me to eat

00:24:35.940 –> 00:24:41.020
and not be sick and you know eat out of

00:24:39.460 –> 00:24:42.460
this cafeteria everyday and what we

00:24:41.020 –> 00:24:44.380
decided was I actually probably

00:24:42.460 –> 00:24:45.940
shouldn’t be eating there because they

00:24:44.380 –> 00:24:47.020
just didn’t feel comfortable enough and

00:24:45.940 –> 00:24:49.210
they didn’t feel like they had the

00:24:47.020 –> 00:24:51.820
resources to make sure that I was gonna

00:24:49.210 –> 00:24:54.700
be you know safe eating out of the

00:24:51.820 –> 00:24:57.220
cafeteria without getting sick so then

00:24:54.700 –> 00:24:59.290
the next step we did was they exempted

00:24:57.220 –> 00:25:01.059
me from the meal plan which you know

00:24:59.290 –> 00:25:02.770
it’s very uncommon for freshmen because

00:25:01.059 –> 00:25:05.890
they almost all are on a freshman meal

00:25:02.770 –> 00:25:09.220
plan but through a TA we I became exempt

00:25:05.890 –> 00:25:13.240
on the meal plan and then from there the

00:25:09.220 –> 00:25:14.530
last thing was we set up this is kind of

00:25:13.240 –> 00:25:16.120
basically just a letter for every

00:25:14.530 –> 00:25:18.490
professor I have and what this letter

00:25:16.120 –> 00:25:21.640
says is you know it’s addressed from the

00:25:18.490 –> 00:25:25.210
ATA rep on campus and then what it says

00:25:21.640 –> 00:25:27.700
is just I will be excused from classes

00:25:25.210 –> 00:25:29.710
if I’m symptomatic if I get gluten if

00:25:27.700 –> 00:25:31.390
I’m sick because Sicilia disease if I’m

00:25:29.710 –> 00:25:33.100
you know whatever if it’s associated

00:25:31.390 –> 00:25:35.320
with that then I’ll be exempt from class

00:25:33.100 –> 00:25:37.510
and all I have to do is give them this

00:25:35.320 –> 00:25:39.640
letter on the first day of classes and

00:25:37.510 –> 00:25:41.950
then from there just you know stay in

00:25:39.640 –> 00:25:43.390
good contact through email luckily

00:25:41.950 –> 00:25:46.570
enough I never missed class last

00:25:43.390 –> 00:25:48.340
semester because of being gluten so that

00:25:46.570 –> 00:25:49.690
was awesome of course but it wouldn’t

00:25:48.340 –> 00:25:52.330
you know is definitely not without

00:25:49.690 –> 00:25:54.580
having this meeting with the ATA rep on

00:25:52.330 –> 00:25:56.920
campus and doing all these things to

00:25:54.580 –> 00:26:02.200
ensure that I will be taken care of

00:25:56.920 –> 00:26:06.580
oh I love that yeah actually the class

00:26:02.200 –> 00:26:09.730
that aired today we’re recording this is

00:26:06.580 –> 00:26:12.910
a 504 plan that I’ve created with my

00:26:09.730 –> 00:26:15.070
kids school and I love that and it’s

00:26:12.910 –> 00:26:17.080
like it’s just wonderful to have people

00:26:15.070 –> 00:26:19.480
advocating for you and just feeling

00:26:17.080 –> 00:26:21.760
heard and like this is the process this

00:26:19.480 –> 00:26:24.010
is like the stepping stone to get to who

00:26:21.760 –> 00:26:26.610
you need to get to and like what a

00:26:24.010 –> 00:26:29.160
blessing and what a miracle and

00:26:26.610 –> 00:26:33.750
impressed you didn’t utilize that you

00:26:29.160 –> 00:26:36.660
can skip class yeah freshmen I don’t

00:26:33.750 –> 00:26:38.370
know if I want a bit now responsible it

00:26:36.660 –> 00:26:43.230
might have been sick during a final or

00:26:38.370 –> 00:26:44.790
something I don’t know so bad if I miss

00:26:43.230 –> 00:26:47.220
class or something I’m like oh I’m gonna

00:26:44.790 –> 00:26:53.460
do something super important you are

00:26:47.220 –> 00:26:55.980
good good okay so that’s awesome I love

00:26:53.460 –> 00:26:57.960
that you got to have your own single

00:26:55.980 –> 00:27:00.980
room I think that’s huge and you didn’t

00:26:57.960 –> 00:27:03.900
have to pay the price for that great

00:27:00.980 –> 00:27:06.000
protection that is that’s good

00:27:03.900 –> 00:27:08.130
and I also loved when you were saying

00:27:06.000 –> 00:27:09.720
about the cafeteria they could have well

00:27:08.130 –> 00:27:11.429
said like oh yeah we’ll make sure you

00:27:09.720 –> 00:27:12.870
know and then but can you really trust

00:27:11.429 –> 00:27:14.630
them that they were open enough to say

00:27:12.870 –> 00:27:17.820
you know what honestly we can’t and we

00:27:14.630 –> 00:27:19.110
would way rather have honesty if you’re

00:27:17.820 –> 00:27:22.559
a college out there we would way rather

00:27:19.110 –> 00:27:27.900
I wanted then to fake it right we can’t

00:27:22.559 –> 00:27:29.669
take it you know every school is

00:27:27.900 –> 00:27:32.429
different so I go to a very small

00:27:29.669 –> 00:27:34.169
private school in Kansas so it’s gonna

00:27:32.429 –> 00:27:35.970
look different everywhere you go cuz I

00:27:34.169 –> 00:27:37.530
know I’ve seen a few articles and stuff

00:27:35.970 –> 00:27:39.960
now that I’m kind of trying to submerge

00:27:37.530 –> 00:27:42.750
myself in this community where I can’t

00:27:39.960 –> 00:27:45.030
remember a school up north Michigan one

00:27:42.750 –> 00:27:47.730
of those schools up there you know are

00:27:45.030 –> 00:27:50.400
making huge leaps and bounds to being

00:27:47.730 –> 00:27:52.110
able to provide for their students that

00:27:50.400 –> 00:27:54.450
have celiac disease and gluten free

00:27:52.110 –> 00:27:56.910
needs so it just depends on the school

00:27:54.450 –> 00:27:59.460
but I think you know if you are sending

00:27:56.910 –> 00:28:02.130
a child off that has celiac disease get

00:27:59.460 –> 00:28:03.600
in contact with your ad a rep get in

00:28:02.130 –> 00:28:05.700
contact with the food service whatever

00:28:03.600 –> 00:28:07.679
it may look like for you but there’s

00:28:05.700 –> 00:28:09.510
definitely people on campus that know

00:28:07.679 –> 00:28:11.880
the answer it might just take some time

00:28:09.510 –> 00:28:13.770
finding that person that has the answer

00:28:11.880 –> 00:28:15.690
but they’re definitely there they’re

00:28:13.770 –> 00:28:17.220
definitely there to help so but

00:28:15.690 –> 00:28:18.990
definitely do your research and do your

00:28:17.220 –> 00:28:20.910
phone calls and emailing probably before

00:28:18.990 –> 00:28:23.190
classes start that’s what I did and that

00:28:20.910 –> 00:28:26.160
made it way easier that’s a good tip

00:28:23.190 –> 00:28:28.950
very good tip awesome okay so you

00:28:26.160 –> 00:28:29.610
mentioned that you play basketball yes I

00:28:28.950 –> 00:28:31.679
do

00:28:29.610 –> 00:28:34.640
so that is awesome but there’s a lot of

00:28:31.679 –> 00:28:36.840
traveling that goes with that right

00:28:34.640 –> 00:28:38.610
that workout with your team I mean

00:28:36.840 –> 00:28:40.020
you’re with a bunch of guys who are just

00:28:38.610 –> 00:28:41.280
like trying to make it to their next

00:28:40.020 –> 00:28:43.530
meal until the bus takes you wherever

00:28:41.280 –> 00:28:46.799
how do you prepare how do you handle

00:28:43.530 –> 00:28:49.200
situations like that um so you kind of

00:28:46.799 –> 00:28:51.570
have to just know where you’re going so

00:28:49.200 –> 00:28:53.970
like if I knew we were playing in a big

00:28:51.570 –> 00:28:56.690
city then like I was gonna be okay with

00:28:53.970 –> 00:28:59.429
you know because we usually take bands

00:28:56.690 –> 00:29:01.020
instead of a big bus it just depends

00:28:59.429 –> 00:29:05.549
when where we’re going or when we’re

00:29:01.020 –> 00:29:07.020
going what it is whatever but uh if I

00:29:05.549 –> 00:29:09.090
didn’t know where we were going I always

00:29:07.020 –> 00:29:10.919
keep staples in my backpack so like I

00:29:09.090 –> 00:29:13.860
always throw in like a peanut butter and

00:29:10.919 –> 00:29:16.650
honey sandwich or two or three and nine

00:29:13.860 –> 00:29:18.450
bars and then water like I always have

00:29:16.650 –> 00:29:20.730
that on me and that always there was

00:29:18.450 –> 00:29:22.770
never time that I didn’t feel like I

00:29:20.730 –> 00:29:26.789
just you know absolutely needed to eat

00:29:22.770 –> 00:29:28.530
or whatever and having those staples in

00:29:26.789 –> 00:29:30.990
my backpack definitely made it way

00:29:28.530 –> 00:29:32.730
easier because if we did you know if the

00:29:30.990 –> 00:29:35.490
only place to stop is McDonald’s I’m not

00:29:32.730 –> 00:29:36.659
gonna eat there I mean I guess I

00:29:35.490 –> 00:29:38.159
probably could have got a salad or

00:29:36.659 –> 00:29:43.169
something but I’m not gonna get a salad

00:29:38.159 –> 00:29:44.700
after a game so but I you know I would

00:29:43.169 –> 00:29:46.340
just eat with the team I just pull it

00:29:44.700 –> 00:29:49.080
out of my backpack I’d eat with the team

00:29:46.340 –> 00:29:51.270
and then I would be full enough by the

00:29:49.080 –> 00:29:53.520
time I got back to my dorm I would try

00:29:51.270 –> 00:29:55.620
to always have like you know a good meal

00:29:53.520 –> 00:29:57.539
like waiting for me when I got back that

00:29:55.620 –> 00:30:00.539
I could just pop in my microwave in

00:29:57.539 –> 00:30:02.309
after the game awesome

00:30:00.539 –> 00:30:04.230
yeah that’s a big deal and then what

00:30:02.309 –> 00:30:05.730
about the other guys do they get it do

00:30:04.230 –> 00:30:08.880
you get do you do they give you some

00:30:05.730 –> 00:30:12.210
hard time they get it took them a while

00:30:08.880 –> 00:30:13.740
to kind of understand you know and it

00:30:12.210 –> 00:30:15.090
just depends on who your teammates are

00:30:13.740 –> 00:30:17.520
of course too because like one of my

00:30:15.090 –> 00:30:18.630
friends his mom has celiac disease one

00:30:17.520 –> 00:30:20.220
of my really good friends from the

00:30:18.630 –> 00:30:23.039
basketball team and he lives kind of

00:30:20.220 –> 00:30:24.840
close to our campus so you know it’s

00:30:23.039 –> 00:30:27.840
kind of fun funny though because like I

00:30:24.840 –> 00:30:29.940
know I can go to their house I want

00:30:27.840 –> 00:30:32.490
because she is you know gluten free too

00:30:29.940 –> 00:30:33.659
so its you just never know who you’re

00:30:32.490 –> 00:30:35.220
gonna run into and make those

00:30:33.659 –> 00:30:37.530
connections with because it’s so fun

00:30:35.220 –> 00:30:40.020
just be able to you know go to his house

00:30:37.530 –> 00:30:41.820
whenever I want you know and hang out

00:30:40.020 –> 00:30:44.549
and whatever and I know that there will

00:30:41.820 –> 00:30:46.780
be food there for me to eat safely what

00:30:44.549 –> 00:30:50.860
a blessing I bet mom

00:30:46.780 –> 00:30:52.690
really happy to yeah that’s really good

00:30:50.860 –> 00:30:55.120
okay so as a whole like how do you

00:30:52.690 –> 00:30:57.610
handle social situations off in college

00:30:55.120 –> 00:30:59.680
you like you go hang out with friends or

00:30:57.610 –> 00:31:02.170
there’s a party or something and like

00:30:59.680 –> 00:31:06.850
how do you how do you handle those and

00:31:02.170 –> 00:31:10.180
do tell everyone first year um every

00:31:06.850 –> 00:31:11.610
social situation is different so like

00:31:10.180 –> 00:31:15.010
let’s say if it’s centered around food

00:31:11.610 –> 00:31:16.450
and if it’s appropriate I don’t always

00:31:15.010 –> 00:31:17.950
do this you know if it’s a dinner or

00:31:16.450 –> 00:31:20.440
something of course I can’t do this but

00:31:17.950 –> 00:31:22.780
if it’s appropriate I’ll go like 10 or

00:31:20.440 –> 00:31:24.160
15 minutes later after it starts because

00:31:22.780 –> 00:31:25.930
that’s usually when they eat the food

00:31:24.160 –> 00:31:27.640
so I’ll get there a little bit later and

00:31:25.930 –> 00:31:28.780
they’ll be almost any eating so then

00:31:27.640 –> 00:31:31.480
it’s not you know there’s not as much

00:31:28.780 –> 00:31:33.640
pressure on me to eat with them or to

00:31:31.480 –> 00:31:35.500
try and find something to eat there so

00:31:33.640 –> 00:31:38.800
that just makes it easier on me to do it

00:31:35.500 –> 00:31:40.960
that way if it is centered around food

00:31:38.800 –> 00:31:42.880
then I usually you know try to get in

00:31:40.960 –> 00:31:44.530
contact with whoever it’s planning it or

00:31:42.880 –> 00:31:45.550
like whatever group is sponsoring it and

00:31:44.530 –> 00:31:48.400
see if there’s gonna be gluten-free

00:31:45.550 –> 00:31:50.110
options there and if there’s not and you

00:31:48.400 –> 00:31:52.390
know I usually eat before I go with

00:31:50.110 –> 00:31:55.300
anyway I mean I say that but I could

00:31:52.390 –> 00:31:56.800
definitely eat two meals so it’s not if

00:31:55.300 –> 00:32:00.220
they do or don’t have food because I

00:31:56.800 –> 00:32:03.370
always eat beforehand yeah but like if

00:32:00.220 –> 00:32:05.500
it’s like a party for example I’m not

00:32:03.370 –> 00:32:07.150
gonna sit down and explain celiac

00:32:05.500 –> 00:32:09.760
disease to every single person that like

00:32:07.150 –> 00:32:12.310
asked me to you know take a drink of

00:32:09.760 –> 00:32:14.230
something or like eat something like I’m

00:32:12.310 –> 00:32:17.080
just not going to when I go to parties

00:32:14.230 –> 00:32:20.200
I don’t eat or drink anything I usually

00:32:17.080 –> 00:32:22.480
have my water with me and that’s you

00:32:20.200 –> 00:32:23.970
know my go-to but it’s super easy

00:32:22.480 –> 00:32:26.560
because I’ve learned there’s other ways

00:32:23.970 –> 00:32:28.030
than just saying no cuz you’re gonna run

00:32:26.560 –> 00:32:30.220
into those people that are like oh just

00:32:28.030 –> 00:32:31.960
take one drink just just come on it’s

00:32:30.220 –> 00:32:34.270
not gonna hurt you hablo and literally

00:32:31.960 –> 00:32:39.160
they know like yeah it’s gonna hurt me

00:32:34.270 –> 00:32:42.880
more than you even a man so some of the

00:32:39.160 –> 00:32:44.200
tools I use is like you know like oh you

00:32:42.880 –> 00:32:46.330
know you never know it’s probably gonna

00:32:44.200 –> 00:32:48.790
be alcohol and their cuff anyway so I

00:32:46.330 –> 00:32:50.920
usually just say you know I’m the DD

00:32:48.790 –> 00:32:53.140
tonight like I’m the responsible one

00:32:50.920 –> 00:32:55.190
like I’m not like I have my water I’m

00:32:53.140 –> 00:32:57.649
good like stuff like that

00:32:55.190 –> 00:32:59.000
and a lot of times you know I’ve been I

00:32:57.649 –> 00:33:00.649
feel like I’ve been lucky because most

00:32:59.000 –> 00:33:01.850
of the situations I’ve been in just a

00:33:00.649 –> 00:33:05.720
simple no thank you

00:33:01.850 –> 00:33:06.919
works better than anything and yeah you

00:33:05.720 –> 00:33:08.570
know because a lot of times these

00:33:06.919 –> 00:33:09.980
situations are going to be you know

00:33:08.570 –> 00:33:11.539
there’s going to be music and it’s gonna

00:33:09.980 –> 00:33:12.500
be really loud or something there’s

00:33:11.539 –> 00:33:15.440
gonna be a lot of people talking

00:33:12.500 –> 00:33:16.940
whatever you’re not gonna sit there and

00:33:15.440 –> 00:33:18.409
explain to them what Luton is and what

00:33:16.940 –> 00:33:21.049
cross contact is and all this and that

00:33:18.409 –> 00:33:22.669
yeah it’s just easier to say you know

00:33:21.049 –> 00:33:24.590
thank you a lot of the time just fitting

00:33:22.669 –> 00:33:28.100
on the situation especially like parties

00:33:24.590 –> 00:33:31.750
and stuff like that absolutely yeah that

00:33:28.100 –> 00:33:34.970
is that’s a very true very true

00:33:31.750 –> 00:33:36.289
so Clayton tell us more about what

00:33:34.970 –> 00:33:38.120
you’re doing right now what are you

00:33:36.289 –> 00:33:40.519
working on what’s what’s keeping you

00:33:38.120 –> 00:33:45.740
excited about your celiac in college

00:33:40.519 –> 00:33:47.840
College and celiac I should say projects

00:33:45.740 –> 00:33:50.179
going right now my first one is I just

00:33:47.840 –> 00:33:52.100
actually started a YouTube channel I’m

00:33:50.179 –> 00:33:54.399
gonna try to use that platform the first

00:33:52.100 –> 00:33:57.289
series is going to be cooking videos

00:33:54.399 –> 00:33:59.149
I’ve already made a few that I’m gonna

00:33:57.289 –> 00:34:01.909
post periodically you know closer to

00:33:59.149 –> 00:34:03.950
school time I have one up it’s a super

00:34:01.909 –> 00:34:05.960
short just like intro to like some of

00:34:03.950 –> 00:34:09.770
the staples in my kitchen this was super

00:34:05.960 –> 00:34:11.359
short video and I hope to you know post

00:34:09.770 –> 00:34:13.250
more videos during the school year like

00:34:11.359 –> 00:34:15.379
this is a typical day for me and like

00:34:13.250 –> 00:34:17.599
you know navigating these social

00:34:15.379 –> 00:34:20.060
situations and whatever it may be but my

00:34:17.599 –> 00:34:21.169
youtube channel is collagen celiac it’s

00:34:20.060 –> 00:34:22.460
the same thing and also I’m super

00:34:21.169 –> 00:34:24.679
excited for that so you can check that

00:34:22.460 –> 00:34:26.740
out and the second thing that I’m

00:34:24.679 –> 00:34:29.389
working on right now is producing

00:34:26.740 –> 00:34:31.220
newsletters each month so I actually

00:34:29.389 –> 00:34:32.569
just sent out my first monthly

00:34:31.220 –> 00:34:36.649
newsletter this month

00:34:32.569 –> 00:34:39.050
this being July yeah and so next month

00:34:36.649 –> 00:34:41.089
in August I’ll send out my next one

00:34:39.050 –> 00:34:42.230
right now I don’t have a platform where

00:34:41.089 –> 00:34:43.609
you can just like go and leave your

00:34:42.230 –> 00:34:47.149
email so right now I’m just working

00:34:43.609 –> 00:34:49.480
slowly through my Instagram page and my

00:34:47.149 –> 00:34:52.909
Instagram page is just collagen celiac

00:34:49.480 –> 00:34:55.069
simple easy you can find me there and

00:34:52.909 –> 00:34:57.020
like I tell everyone my dams are always

00:34:55.069 –> 00:34:59.119
open I love answering questions and

00:34:57.020 –> 00:35:00.420
talking to people so but yeah those are

00:34:59.119 –> 00:35:02.160
my two projects I’m working

00:35:00.420 –> 00:35:05.279
right now and I’m super excited about to

00:35:02.160 –> 00:35:06.809
help you know keep making these

00:35:05.279 –> 00:35:08.670
platforms in different ways to help

00:35:06.809 –> 00:35:11.460
college students and parents sending

00:35:08.670 –> 00:35:14.549
their child to college that is so

00:35:11.460 –> 00:35:15.990
important I love that because when we

00:35:14.549 –> 00:35:18.180
were diagnosed I’m like okay well what

00:35:15.990 –> 00:35:20.130
does that look like I I text everybody I

00:35:18.180 –> 00:35:22.230
knew that had like the a gluten-free or

00:35:20.130 –> 00:35:23.910
had celiac disease and I’m like or that

00:35:22.230 –> 00:35:25.980
knew someone if somebody like I’m just

00:35:23.910 –> 00:35:28.500
like you let me a picture of what your

00:35:25.980 –> 00:35:32.039
pantry looks like what’s in your fridge

00:35:28.500 –> 00:35:36.029
like I just needed this see I don’t know

00:35:32.039 –> 00:35:37.859
what this looks like so going out to

00:35:36.029 –> 00:35:39.869
college is already intimidating and

00:35:37.859 –> 00:35:41.400
scary as it is and then you throw on

00:35:39.869 –> 00:35:44.519
like okay now you need to be gluten free

00:35:41.400 –> 00:35:47.309
and it’s like ah so having this visual

00:35:44.519 –> 00:35:49.109
in a youtube format is so perfect in a

00:35:47.309 –> 00:35:51.569
video and so that is really really

00:35:49.109 –> 00:35:54.170
exciting I hope you really remember to

00:35:51.569 –> 00:35:57.329
keep posting throughout the year cuz

00:35:54.170 –> 00:35:59.220
absolutely that’s needed radar because

00:35:57.329 –> 00:36:01.559
you know and whenever I was you know

00:35:59.220 –> 00:36:03.089
kind of trying to think about my next

00:36:01.559 –> 00:36:05.759
project that I was going to try to work

00:36:03.089 –> 00:36:07.500
on YouTube was kind of the easy answer

00:36:05.759 –> 00:36:09.210
because I love you too you know everyone

00:36:07.500 –> 00:36:10.890
I’ve ever met in college they love you

00:36:09.210 –> 00:36:13.079
too everyone has their favorite youtuber

00:36:10.890 –> 00:36:15.750
I’m not saying I’m gonna be like the

00:36:13.079 –> 00:36:17.130
next youtuber out there but I thought it

00:36:15.750 –> 00:36:19.980
would be another really good platform to

00:36:17.130 –> 00:36:22.380
kind of use utilize and show people what

00:36:19.980 –> 00:36:26.160
life is being College and celiac for

00:36:22.380 –> 00:36:28.470
sure yes absolutely clean you’re awesome

00:36:26.160 –> 00:36:31.079
we’re having so many amazing things

00:36:28.470 –> 00:36:32.849
already and you’re a sophomore imagine

00:36:31.079 –> 00:36:34.819
what is gonna transpire by your senior

00:36:32.849 –> 00:36:37.470
year and I hope so

00:36:34.819 –> 00:36:40.700
you’re awesome so thank you for taking

00:36:37.470 –> 00:36:44.339
the time out of your busy to hop on

00:36:40.700 –> 00:36:45.990
spread more awareness for sending kids

00:36:44.339 –> 00:36:48.539
off to college because that’s exactly

00:36:45.990 –> 00:36:50.640
what a lot of moms and dads are freaking

00:36:48.539 –> 00:36:52.740
out right now sending their child away

00:36:50.640 –> 00:36:56.039
to college with celiac disease so you

00:36:52.740 –> 00:36:58.500
are a perfect example of what we all

00:36:56.039 –> 00:37:00.230
hope our children will be when they go

00:36:58.500 –> 00:37:02.910
off to college

00:37:00.230 –> 00:37:04.380
okay do you have any takeaway do you

00:37:02.910 –> 00:37:07.380
have a takeaway that you’re like I want

00:37:04.380 –> 00:37:08.130
everybody to know this um yeah I do

00:37:07.380 –> 00:37:10.950
actually

00:37:08.130 –> 00:37:12.370
um actually you told me to have one

00:37:10.950 –> 00:37:17.800
takeaway I actually kind of

00:37:12.370 –> 00:37:20.230
so we love toys but my takeaways would

00:37:17.800 –> 00:37:21.460
definitely be a positive attitude will

00:37:20.230 –> 00:37:22.090
get you further in life than you can

00:37:21.460 –> 00:37:23.800
even imagine

00:37:22.090 –> 00:37:25.810
because that’s one thing that I try to

00:37:23.800 –> 00:37:28.450
be you know the most positive person in

00:37:25.810 –> 00:37:30.070
the room no matter where I go you know

00:37:28.450 –> 00:37:32.380
whether it be when I’m showing up to

00:37:30.070 –> 00:37:34.180
class showing up you know to practice

00:37:32.380 –> 00:37:36.310
and that’s one thing that actually you

00:37:34.180 –> 00:37:37.540
know one of those feel-good moments that

00:37:36.310 –> 00:37:39.670
you don’t even think about that you have

00:37:37.540 –> 00:37:42.310
with yourself and the end-of-the-year

00:37:39.670 –> 00:37:43.690
meeting with my coaches that’s what my

00:37:42.310 –> 00:37:45.520
coaches had to say they’re like you know

00:37:43.690 –> 00:37:47.380
what you were that guy that always had a

00:37:45.520 –> 00:37:49.840
smile on his face showed up ready to

00:37:47.380 –> 00:37:51.850
work and just you know had that positive

00:37:49.840 –> 00:37:53.650
attitude and you know just hearing them

00:37:51.850 –> 00:37:56.140
say that that kind of you know RIA you

00:37:53.650 –> 00:37:57.610
know Reese Park that in me to be that

00:37:56.140 –> 00:38:00.030
person and to be that positive attitude

00:37:57.610 –> 00:38:02.680
everywhere I go so that’s so important

00:38:00.030 –> 00:38:04.870
the next one is just finding your why

00:38:02.680 –> 00:38:07.360
like when I get up in the morning like

00:38:04.870 –> 00:38:10.420
what is my why like what is my purpose

00:38:07.360 –> 00:38:13.240
you actually on a phone call ask me what

00:38:10.420 –> 00:38:15.220
my purpose was starting this brand in

00:38:13.240 –> 00:38:16.750
that honestly like I think about that a

00:38:15.220 –> 00:38:20.770
lot more than you probably even thought

00:38:16.750 –> 00:38:22.630
I would but I think about that and you

00:38:20.770 –> 00:38:24.220
know whatever whether it be it’s

00:38:22.630 –> 00:38:25.690
different for everybody so you know my

00:38:24.220 –> 00:38:26.950
why is gonna be different than your life

00:38:25.690 –> 00:38:29.560
course and it’s gonna be different for

00:38:26.950 –> 00:38:31.210
everybody but find your why that’s so

00:38:29.560 –> 00:38:33.880
important and then the last takeaway I

00:38:31.210 –> 00:38:35.680
have is going back to n you know my

00:38:33.880 –> 00:38:38.380
athletic background have that you know

00:38:35.680 –> 00:38:39.940
quote unquote hungry mentality so like

00:38:38.380 –> 00:38:41.320
getting up in the morning and just

00:38:39.940 –> 00:38:44.080
telling yourself you know I’m gonna be

00:38:41.320 –> 00:38:46.030
the best today I’m gonna be the best and

00:38:44.080 –> 00:38:47.800
whatever I’m doing so like when I get up

00:38:46.030 –> 00:38:50.530
I’m like I’m gonna be you know the best

00:38:47.800 –> 00:38:52.450
I can be in class when I’m going and

00:38:50.530 –> 00:38:54.820
taking notes and doing whatever I’m

00:38:52.450 –> 00:38:56.560
gonna be the best you know I can for

00:38:54.820 –> 00:38:57.880
called celiac on this you know on this

00:38:56.560 –> 00:39:00.010
platform I’m going to be the best that I

00:38:57.880 –> 00:39:02.260
can be in sharing my story or whatever

00:39:00.010 –> 00:39:04.090
it may be so having that hungry

00:39:02.260 –> 00:39:05.380
mentality I think is super important too

00:39:04.090 –> 00:39:07.600
and that’s just kind of my athletic

00:39:05.380 –> 00:39:09.640
background talking but I think those

00:39:07.600 –> 00:39:12.700
would be my takeaways for sure that’s

00:39:09.640 –> 00:39:14.350
fabulous you are positive you’re all the

00:39:12.700 –> 00:39:19.090
things that’s incredible you are the

00:39:14.350 –> 00:39:20.890
best like that is such a good reminder

00:39:19.090 –> 00:39:23.140
and sheesh you’ve learned life lessons

00:39:20.890 –> 00:39:24.600
at such a young age and I think that’s

00:39:23.140 –> 00:39:27.330
what comes with

00:39:24.600 –> 00:39:28.650
having trials there’s Slingbox things

00:39:27.330 –> 00:39:30.840
that try to throw you away you know

00:39:28.650 –> 00:39:32.490
throw you down and just being able to

00:39:30.840 –> 00:39:34.200
come up and conquer it and you

00:39:32.490 –> 00:39:36.210
definitely conquer you celiac disease so

00:39:34.200 –> 00:39:38.100
thank you so much for your example thank

00:39:36.210 –> 00:39:41.340
you for having me thank you so much I

00:39:38.100 –> 00:39:43.470
really enjoyed this Thanks well we all

00:39:41.340 –> 00:39:46.950
are less loving listening to you too so

00:39:43.470 –> 00:39:48.060
all right until next time yo until next

00:39:46.950 –> 00:39:50.820
time thank you

00:39:48.060 –> 00:39:52.530
thank you for tuning in today double

00:39:50.820 –> 00:39:54.300
check to make sure you subscribe to this

00:39:52.530 –> 00:39:57.060
podcast so that you don’t miss another

00:39:54.300 –> 00:39:59.460
episode and remember sharing is caring

00:39:57.060 –> 00:40:01.860
and one way you can help me and help

00:39:59.460 –> 00:40:03.960
this podcast reach the masses is by

00:40:01.860 –> 00:40:06.150
leaving a comment review to share with

00:40:03.960 –> 00:40:07.860
the world why all of our gluten-free

00:40:06.150 –> 00:40:10.980
friends need to be tuning in and

00:40:07.860 –> 00:40:13.230
listening along with us also do you have

00:40:10.980 –> 00:40:15.990
a favorite social media platform to

00:40:13.230 –> 00:40:17.940
Instagram YouTube Pinterest Facebook I

00:40:15.990 –> 00:40:18.570
want to see your gluten-free face there

00:40:17.940 –> 00:40:21.090
too

00:40:18.570 –> 00:40:23.820
so find me at serving celiacs wherever

00:40:21.090 –> 00:40:26.740
you like to hang out and go and have the

00:40:23.820 –> 00:40:33.150
best gluten-free day

00:40:26.740 –> 00:40:33.150
[Music]