College, Social Life, Gluten Free as a Celiac
If you know anyone that is going off to college as a celiac… they NEED to hear this. And if you are like me and just wonder what college life looks like as a celiac, You have to go hear how Clayton rocks college and stays 100% gluten free!
In this episode, Clayton @CollegeAndCeliac, is going to share some tips that he has learned in his college journey so far. He talks about how to eat safely in the dorms, how to still participate in sports & exercise while having celiac disease, and the importance of choosing the right doctor who listens and is open minded on making sure you get the best treatment possible!!!
What I like most about Clayton’s insights are how he shares an extremely frustrating and sometimes embarrassing situation along with some solutions… eating gluten free socially and how to best explain to others about why we eat the way we do
As you know, educating yourself is a lifelong journey and if we want to live the healthiest and best life that we can, then it is up to us to stay up to date with the latest information.
Listen to the entire episode on
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Empowering and supporting each other so we can grow together is the entire reason why I started this podcast. I am so honored to be able to interview and be amongst celiac giants!
I am doing this for us, because together we can make a difference
Listen to the full podcast below and as always the transcripts are below so you can read along or take notes if you like
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Transcript:
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I am so glad that you’re here and I’m so
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glad that I’m here welcome to the
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gluten-free you and me podcast where we
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learn and navigate and simplify our
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lives together in this gluten filled
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world today we are covering everything
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about going to college with celiac
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disease or if any of you out there who
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have any food restricted diets this
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episode is going to help you
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I have Clayton here now I have spent
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some serious time with this boy and he
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is phenomenal he’s making such an impact
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on the world and I love it and I’m
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honored that he’s our guest today you’re
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gonna just love the content that he
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shares the positivity he brings and all
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of his tips and tricks so with that
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being said I want to give the review of
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the week and today the winner is lomi pi
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I love that ello mie piee
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and this is what she had to say if
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you’re someone who has been a celiac for
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a short or a long time this is the place
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for you
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I was diagnosed with celiac a little
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over ten years
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when there was very little common
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awareness about celiac disease and
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people with severe gluten issues I’ve
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navigated this road for quite a while
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but every day quarrel through her social
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media outlets teaches me things I didn’t
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know and provides new information and
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new ways of helping others know about my
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condition thank you so much for
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listening to your calling and putting
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something so wonderful out there for all
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of us this gets me because you guys this
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is why I’m doing it i’m so grateful let
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me pie you are just one a gluten free
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guide that i’m gonna email you so email
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me at info at serving celiacs calm and I
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will send that right over because yes no
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matter if you’ve been putting free for
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five days or five years or 50 years we
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all need help and support and so this
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guide is awesome and I can’t wait for
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you to get your hands on it so I’m kind
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over a hundred and twenty five gluten
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free items that by just ingredients and
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I compiled together to bring to you the
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best and cleanest resource we could all
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right everyone today I am here with an
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amazing influencer Clayton college and
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celiac how you doing I need like this
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drumroll I need like this big thing cuz
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this is a big deal that you’re here
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today talking thank you so Clayton I
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want you to introduce yourself tell
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everybody a little bit about who you are
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and what you do and why you are College
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and celiac alright so I haven’t been an
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influencer for long that’s kind of a new
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title for me but my name is Clayton I am
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college and celiacs and I’m gonna be a
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sophomore in college this upcoming fall
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semester I was first diagnosed my senior
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year of high school so only about two
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years being gluten-free 100% but I’m
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here and I really thought that you know
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the thing that got me through after I
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was diagnosed was everyone else
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their story and I thought if I could
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give back to people that were once in my
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shoes by sharing my story I thought we
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know what better way to give back and
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just create this platform in this thing
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that I can share with other people I
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love that about you
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incredible because you’re like in it
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you’re in it right now in college so
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when you speak it’s like you’re speaking
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right with us I know oh yeah I’m always
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in present tense that’s the thing I’m
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always in present tense because it’s
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always just coming at me right now you
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know yeah you’re like this is what you
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don’t do so you help everyone else
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eliminate though what you’re not
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supposed to do which is blessing good
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okay so you’ve been gluten-free for two
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years now yes how is that getting that
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diagnosis um I actually had a memory
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pop-up just the other day it’s been
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about two years since my symptoms really
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kind of turned on I was at a basketball
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camp and I just thought it was a stomach
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flu you know I was just down I wasn’t
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performing as well and I you know my
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stomach just hurt it was sick whatever
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and then you know after a few months
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went by in the stomach flu I thought
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never went away I was like Oh something
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is really wrong so you know once we got
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the diagnosis it was you know I’m very
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blessed because it was much faster than
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a lot of people’s you know you hear the
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horror stories up good you know being 10
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15 20 years that they go and they’re
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sick and they’re you know just having a
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terrible time for a really long time but
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I was you know one of the lucky ones I
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say because it only took a few months
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and whenever we actually went in for
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like the preliminary testings
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celiac screening was on the preliminary
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testing so I’m very thankful for that
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and that I had a doctor that was
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educated you know what he was doing that
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is incredible yeah you don’t hear that
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very often no exactly the reverse we’re
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like pleading can you just test that
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that is huge so has that doctor that you
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went to has he seen a lot of people with
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celiac disease is that how or it was
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just his panel that he normally does and
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he I feel like there’s a little bit of
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fact that I had some of the you know
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very generic symptoms you know it was
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after I would eat it would be you know
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the stomach issues the bathroom issues
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those things but I feel like he
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definitely is I was lucky that my doctor
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was one of those that tries to stay on
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trend if that makes any sense like yeah
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every time we would talk to him you know
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even if it was just a checkup he would
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say well in this you know I read this
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the other day or I heard about this the
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other day from one of my doctor friends
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so you know the more that I feel like
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you have a doctor that’s kind of you
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know in the loop
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in the medical world and on top of
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things that you know it might be easier
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for you to advocate for yourself too
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because if they you know if it’s on
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their radar then it’s kind of easier to
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get it figured out that is really good
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and that’s a really good point to bring
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up I know that there’s a lot of people
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who feel really frustrated with their
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doctors but doing some research
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beforehand finding a younger doctor may
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be in your benefit or one that’s willing
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to learn and grow and listen I work for
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an OBGYN and I’m like I have the best
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doctor that I work for because he’s a
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listener and I’m like you’re not gonna
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find a better OB because he will sit
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down and listen to you that’s it you
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know yes I think that that’s what it’s
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so many um we get a runaround because of
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that fact that some are just fixed in
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more of an older traditional way and no
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celiac disease is up and coming and more
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con than ever so awesome okay so that
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means you were you said you were your
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senior year or is it easier
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in between junior and senior year yeah
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it was in the summer time okay so then
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you play basketball yes I do and so tell
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me like what emotions were going where
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you going through when you got diagnosed
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it was super super challenging and so
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frustrating
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because of the fact I was in summer
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league so you know summertime for
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basketball players is whenever you’re
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you know doing all your fundamental
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workouts and lifting weights and running
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and it’s just your time that you just
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focus on getting better
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for the winter season so it was so
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challenging to you know show up to
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practice you know I still showed up
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every day but I was getting to the point
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where I would show up and you know my
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body just want to let me participate
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like I would try every day I would try
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it was pretty bad there for a while too
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and this is kind of embarrassing but
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after my diagnosis you know it takes a
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while to heal but you know I was like
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well now I know the issue so I’m gonna
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be better right away right so I you know
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started going full force of practice and
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stuff and then I would just be you know
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basically just dry keeping and running
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and just oh it’s bad there for a while
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but I really think that you know those
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curveballs that a kind of face kind of
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helped me you know navigate and kind of
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learn about my body and the healing
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process and it kind of tell me to do
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more research on my own about the
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disease than what my doctor and
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dietician was telling me and I think
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that’s important for a lot of people to
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kind of you know share your story and
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hear other people’s stories because I
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feel like everyone’s so different in the
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spectrum of celiac disease is so
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different for everybody because you know
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some people the way my doctor put it to
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me he acted like internally it would
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take longer to heal but I didn’t realize
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that I would still be having symptoms
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for a long time and that’s frustrating
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because you’re like ah I’m doing
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supposed to be doing yeah okay so how is
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it socially I mean that’s like that’s a
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huge time in your life okay so socially
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it is a challenge because of the fact
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that not everyone knows about celiac
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disease yet and it doesn’t have as much
00:09:10.720 –> 00:09:15.610
awareness and but I think advocating for
00:09:13.840 –> 00:09:17.080
yourself and just you know kind of
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having that sit-down conversation with
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your friends like this is what it is
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this is what I can and can’t do be
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patient with me please you know those
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type of things are so important and then
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it makes social situation that much
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easier to navigate because if they’re
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you know informed about it they can
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actually advocate for you when you’re
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not around so there’s been so many times
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when I’m at
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or something in all order and I’m so bad
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and this is something that I need to get
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way better about but it I’m bad about
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always telling them I have a gluten
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allergy you know it’s just easy to say
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allergy right then give me the whole
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spiel but sometimes I’ll just ordered
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the gluten-free option and not even add
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that little bit because we’re actually
00:09:56.510 –> 00:09:59.390
whenever I was on vacation a few months
00:09:58.730 –> 00:10:02.300
ago
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you know I ordered and then my friend
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looks at me and then he looks at the
00:10:04.130 –> 00:10:11.120
waiter and he goes and he has a gluten
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allergy and by the way that’s important
00:10:11.120 –> 00:10:16.130
and they wrote so it’s just finding
00:10:14.180 –> 00:10:17.720
those friends that you know are super
00:10:16.130 –> 00:10:20.180
concerned about your needs and your
00:10:17.720 –> 00:10:21.230
safety and your health is so important
00:10:20.180 –> 00:10:27.590
and that’s one thing that I try to
00:10:21.230 –> 00:10:29.510
advocate on top is that yes that is huge
00:10:27.590 –> 00:10:31.640
and I think wow that’s really impressive
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because I feel and this is totally
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stereotyping here but I feel like for
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for guys it’s a lot different to like
00:10:36.080 –> 00:10:40.970
sit down and have a discussion or be
00:10:38.600 –> 00:10:45.200
like hey these are my feelings like
00:10:40.970 –> 00:10:47.000
really it’s just not as common yeah I
00:10:45.200 –> 00:10:49.310
think that’s wonderful that you have
00:10:47.000 –> 00:10:51.530
friends that you can be that way with
00:10:49.310 –> 00:10:53.120
yeah yeah and it’s not and it doesn’t
00:10:51.530 –> 00:10:54.980
always go like that I’ll just be honest
00:10:53.120 –> 00:10:58.760
cuz like especially whenever I first
00:10:54.980 –> 00:11:01.400
like got on campus as a college
00:10:58.760 –> 00:11:04.460
basketball player I didn’t even tell my
00:11:01.400 –> 00:11:07.070
coach that I had any issues until the
00:11:04.460 –> 00:11:08.870
day of move in whenever he came down and
00:11:07.070 –> 00:11:11.120
he was like oh I’m so glad to hear bla
00:11:08.870 –> 00:11:13.130
bla I hope you get moved in and he’s
00:11:11.120 –> 00:11:15.620
like we’re gonna go eat later bla bla
00:11:13.130 –> 00:11:16.970
bla and I was like well actually I meant
00:11:15.620 –> 00:11:19.730
to tell you this awhile ago
00:11:16.970 –> 00:11:22.520
but here’s the thing so I don’t always
00:11:19.730 –> 00:11:24.470
do it the way I should because I think
00:11:22.520 –> 00:11:26.630
you’re right I think guys and that’s one
00:11:24.470 –> 00:11:28.760
thing I do struggle with is I want to
00:11:26.630 –> 00:11:30.770
just you know act like nothing’s wrong
00:11:28.760 –> 00:11:33.590
and I don’t have issues and I don’t have
00:11:30.770 –> 00:11:35.150
to be different than other people but
00:11:33.590 –> 00:11:36.530
it’s so important to have those
00:11:35.150 –> 00:11:38.390
conversations and to make that
00:11:36.530 –> 00:11:41.600
connection and kind of the word I use
00:11:38.390 –> 00:11:42.920
kind of get over yourself and just do it
00:11:41.600 –> 00:11:45.560
because it’s for your own good
00:11:42.920 –> 00:11:49.070
is one of those things right yeah you
00:11:45.560 –> 00:11:50.270
can’t you can’t not bring this up yes
00:11:49.070 –> 00:11:52.670
yeah to some
00:11:50.270 –> 00:11:56.240
you’re gonna be with all the time like
00:11:52.670 –> 00:11:57.710
your basketball coach yes so hey we’ve
00:11:56.240 –> 00:11:59.720
kind of transition into your college
00:11:57.710 –> 00:12:01.580
life now now how hard was it we have a
00:11:59.720 –> 00:12:04.070
lot of moms out there listening to this
00:12:01.580 –> 00:12:06.740
today and I want to know how hard was it
00:12:04.070 –> 00:12:08.690
for your mom to send you away to college
00:12:06.740 –> 00:12:13.190
and not like he’d be right closer I had
00:12:08.690 –> 00:12:14.840
a community college Oh mom I mean for
00:12:13.190 –> 00:12:16.400
the most part she was great I will say
00:12:14.840 –> 00:12:20.180
that she was great about the whole thing
00:12:16.400 –> 00:12:22.280
she definitely worried a lot in the you
00:12:20.180 –> 00:12:24.830
know in the weeks right after my
00:12:22.280 –> 00:12:27.470
diagnosis I think and I’ve heard this
00:12:24.830 –> 00:12:28.700
from a lot of moms a lot of people have
00:12:27.470 –> 00:12:30.770
you know reached out to me with this
00:12:28.700 –> 00:12:34.030
exact same issue and I was so shocked I
00:12:30.770 –> 00:12:37.250
figured it just of me and my mom thing
00:12:34.030 –> 00:12:39.200
mom and I were bloody headed so bad
00:12:37.250 –> 00:12:41.480
after my diagnosis it was kind of
00:12:39.200 –> 00:12:43.190
ridiculous it was just you know just the
00:12:41.480 –> 00:12:45.710
fact that I was angry at the world a
00:12:43.190 –> 00:12:47.510
little bit and she was frustrated but
00:12:45.710 –> 00:12:49.850
more than anything she just wanted you
00:12:47.510 –> 00:12:51.890
know to take the pain away and to make
00:12:49.850 –> 00:12:54.470
me not you know make me not have any
00:12:51.890 –> 00:12:57.140
issues so bad and you know all these
00:12:54.470 –> 00:12:58.430
emotions were flying around because I
00:12:57.140 –> 00:13:01.130
remember one time we were in the kitchen
00:12:58.430 –> 00:13:02.780
and I was like eating I don’t know my
00:13:01.130 –> 00:13:05.540
fifth bowl of Cheerios or something of
00:13:02.780 –> 00:13:07.100
the day she was like asking me like what
00:13:05.540 –> 00:13:12.830
I wanted to eat I’m just like I don’t
00:13:07.100 –> 00:13:15.530
know what I can we were just going at it
00:13:12.830 –> 00:13:17.480
but you know I think some of that was
00:13:15.530 –> 00:13:19.970
actually kind of healthy in navigating
00:13:17.480 –> 00:13:21.680
the relationship between you know your
00:13:19.970 –> 00:13:23.170
parents and celiac disease are you
00:13:21.680 –> 00:13:25.610
having a child with celiac disease
00:13:23.170 –> 00:13:27.290
because you know after we had those
00:13:25.610 –> 00:13:30.020
conversations and did that research
00:13:27.290 –> 00:13:31.550
together I think she was a lot more okay
00:13:30.020 –> 00:13:33.710
sending me away to college because she
00:13:31.550 –> 00:13:35.930
knew I was gonna stick to my diet she
00:13:33.710 –> 00:13:38.470
was gonna try to do what was best for me
00:13:35.930 –> 00:13:40.940
and my health so I think she wasn’t as
00:13:38.470 –> 00:13:43.400
president swimming away because you know
00:13:40.940 –> 00:13:45.920
she had seen us go through all of that
00:13:43.400 –> 00:13:47.690
together but at the same time she
00:13:45.920 –> 00:13:49.190
definitely worried a lot I will I won’t
00:13:47.690 –> 00:13:52.190
let her off the line she definitely did
00:13:49.190 –> 00:13:53.630
worry a lot I’d get lots of texts and
00:13:52.190 –> 00:13:55.460
lots of phone calls about what I was
00:13:53.630 –> 00:13:58.520
eating and how I was eating and stuff
00:13:55.460 –> 00:14:00.200
like that and I bet she’s so proud of
00:13:58.520 –> 00:14:02.630
you now seeing what you’re doing
00:14:00.200 –> 00:14:04.670
platform and everything I just I think
00:14:02.630 –> 00:14:07.970
that that is like proud mom moment to
00:14:04.670 –> 00:14:10.700
the fullest and you failed to mention
00:14:07.970 –> 00:14:13.670
that like you’re a cook you are like a
00:14:10.700 –> 00:14:16.730
little rough here so that helps a lot
00:14:13.670 –> 00:14:18.199
you love to cook so that’s because we
00:14:16.730 –> 00:14:22.370
all know that we have to we have to
00:14:18.199 –> 00:14:25.880
learn that skill yeah if you because you
00:14:22.370 –> 00:14:27.290
have to learn to yes it kind of goes
00:14:25.880 –> 00:14:29.360
hand in hand so I think that that’s
00:14:27.290 –> 00:14:33.110
incredible so do you have any tips for
00:14:29.360 –> 00:14:36.139
any any other moms out there I would
00:14:33.110 –> 00:14:40.760
definitely say just probably you know
00:14:36.139 –> 00:14:42.980
teach your child to cook a few meals you
00:14:40.760 –> 00:14:44.420
know don’t make it like to the point
00:14:42.980 –> 00:14:45.889
where you’re just like here I’m gonna
00:14:44.420 –> 00:14:47.480
teach you this but try to just be like
00:14:45.889 –> 00:14:49.250
have them around the kitchen or
00:14:47.480 –> 00:14:51.199
something and so they kind of pick up on
00:14:49.250 –> 00:14:52.519
those things because I know that’s the
00:14:51.199 –> 00:14:54.320
thing with me just being around the
00:14:52.519 –> 00:14:56.300
kitchen a lot when like you know mom or
00:14:54.320 –> 00:14:58.130
dad would be cooking that I picked up
00:14:56.300 –> 00:15:00.529
that’s where I learned to cook was just
00:14:58.130 –> 00:15:02.810
watching them through the years so just
00:15:00.529 –> 00:15:04.760
you know kind of showing them how to
00:15:02.810 –> 00:15:06.589
cook some staple meals or whatever it
00:15:04.760 –> 00:15:09.019
may be what you know cooking the meals
00:15:06.589 –> 00:15:10.760
that they like that would be one of the
00:15:09.019 –> 00:15:13.550
tips and the other tip would definitely
00:15:10.760 –> 00:15:15.649
just don’t worry too much because at the
00:15:13.550 –> 00:15:17.750
end of the day like we’re gonna you know
00:15:15.649 –> 00:15:18.980
especially college students like we’re
00:15:17.750 –> 00:15:20.540
getting to that point where we’re
00:15:18.980 –> 00:15:23.870
learning how important making our own
00:15:20.540 –> 00:15:25.610
decisions are so and I actually had
00:15:23.870 –> 00:15:28.910
someone reach out to me one time that
00:15:25.610 –> 00:15:30.560
said you know her child was to the point
00:15:28.910 –> 00:15:32.390
where he was so frustrated that he was
00:15:30.560 –> 00:15:34.399
just you know after he moved out he was
00:15:32.390 –> 00:15:36.649
gonna not even gluten-free anymore and
00:15:34.399 –> 00:15:39.470
this and that and what I finally had to
00:15:36.649 –> 00:15:41.000
you know tell her was he will get to the
00:15:39.470 –> 00:15:42.920
point where he kind of goes through the
00:15:41.000 –> 00:15:45.110
school of hard knocks and if he choose
00:15:42.920 –> 00:15:46.850
to do that he’ll definitely wish he had
00:15:45.110 –> 00:15:49.459
no because he’s gonna go through all the
00:15:46.850 –> 00:15:52.430
pain and all the suffering of eating you
00:15:49.459 –> 00:15:54.019
know gluten when he shouldn’t be and I
00:15:52.430 –> 00:15:57.470
feel like that’s you know with any
00:15:54.019 –> 00:15:59.449
situation it’s not just celiac students
00:15:57.470 –> 00:16:02.240
eating gluten it’s you know making bad
00:15:59.449 –> 00:16:04.100
choices in there too absolutely
00:16:02.240 –> 00:16:06.019
absolutely and there’s even some that
00:16:04.100 –> 00:16:09.440
don’t have physical symptoms and so they
00:16:06.019 –> 00:16:12.079
don’t know but over time it’s gonna
00:16:09.440 –> 00:16:13.250
catch up to them because we know how
00:16:12.079 –> 00:16:15.560
autoimmune disease
00:16:13.250 –> 00:16:17.360
his work and once you have one you’re
00:16:15.560 –> 00:16:20.000
very susceptible to having many others
00:16:17.360 –> 00:16:22.640
and so it it is a school of hard knocks
00:16:20.000 –> 00:16:24.200
and we all have to make our own choices
00:16:22.640 –> 00:16:26.240
you know something that I try to do with
00:16:24.200 –> 00:16:28.490
my daughter Chanel when she was first
00:16:26.240 –> 00:16:31.780
diagnosed I mean it was hard she was
00:16:28.490 –> 00:16:35.600
two-and-a-half and I just remember I
00:16:31.780 –> 00:16:36.620
just kept giving her options and people
00:16:35.600 –> 00:16:38.120
were like how are you gonna give her an
00:16:36.620 –> 00:16:41.690
option I’m like because you can kind of
00:16:38.120 –> 00:16:44.150
do a mind trick game and I would say
00:16:41.690 –> 00:16:46.370
well you can you can eat this but you’re
00:16:44.150 –> 00:16:48.830
probably gonna be really sick or you’re
00:16:46.370 –> 00:16:51.320
gonna throw up after it it’s your choice
00:16:48.830 –> 00:16:53.930
and let me tell you because it was her
00:16:51.320 –> 00:16:56.150
choice she never fought me on it and she
00:16:53.930 –> 00:16:58.400
appreciated that fact and I think that
00:16:56.150 –> 00:17:01.430
we all need that agency I don’t care if
00:16:58.400 –> 00:17:04.540
you’re 2 or you’re 92 like we all need
00:17:01.430 –> 00:17:06.920
to feel like this is our choice and so
00:17:04.540 –> 00:17:08.449
cutting that that’s hard as a parent oh
00:17:06.920 –> 00:17:10.220
yeah I can tell you from my standpoint
00:17:08.449 –> 00:17:12.620
like because if my daughter would have
00:17:10.220 –> 00:17:14.990
said oh I’m just gonna eat it I really
00:17:12.620 –> 00:17:17.329
know what I was I probably would have
00:17:14.990 –> 00:17:19.430
just helped her pick up her throw up and
00:17:17.329 –> 00:17:22.100
we would learn the next time you know
00:17:19.430 –> 00:17:24.290
like we all have to learn and so it’s
00:17:22.100 –> 00:17:25.910
just sometimes you have to just let you
00:17:24.290 –> 00:17:28.010
fly and so especially going off to
00:17:25.910 –> 00:17:29.480
college I I can’t imagine what that was
00:17:28.010 –> 00:17:31.190
like for your mom or for others out
00:17:29.480 –> 00:17:37.070
there I’m gonna be there probably sooner
00:17:31.190 –> 00:17:39.290
that I really feel yes okay so you also
00:17:37.070 –> 00:17:40.850
mentioned that you kind of did some
00:17:39.290 –> 00:17:42.290
research on your own you had a doctor
00:17:40.850 –> 00:17:43.940
you had a dietitian which was wonderful
00:17:42.290 –> 00:17:45.800
for you but you needed to do some
00:17:43.940 –> 00:17:48.080
research on your own what were some
00:17:45.800 –> 00:17:50.930
resources or organizations that helped
00:17:48.080 –> 00:17:52.910
you along that way for sure I’m one of
00:17:50.930 –> 00:17:57.140
the organizations that I first got in
00:17:52.910 –> 00:17:59.120
contact with was the stepping on celiac
00:17:57.140 –> 00:18:01.850
group out of Kansas City and so what
00:17:59.120 –> 00:18:05.060
they are they’re a group that was formed
00:18:01.850 –> 00:18:06.200
I think three years ago now I probably
00:18:05.060 –> 00:18:09.340
should have got all the facts in front
00:18:06.200 –> 00:18:11.540
of me before I came on here
00:18:09.340 –> 00:18:14.450
so what it was is a group of moms
00:18:11.540 –> 00:18:16.310
basically and you know very similar to
00:18:14.450 –> 00:18:17.960
every mom that has a child diagnosed
00:18:16.310 –> 00:18:19.760
with celiac disease they just want to
00:18:17.960 –> 00:18:21.560
help I just want to find a cure they
00:18:19.760 –> 00:18:22.860
just want to take the pain away they
00:18:21.560 –> 00:18:25.770
just want to do whatever they can
00:18:22.860 –> 00:18:29.549
make it better when it was was a mom who
00:18:25.770 –> 00:18:31.710
you know form this 5k fundraiser to
00:18:29.549 –> 00:18:34.890
raise money for celiac disease but she
00:18:31.710 –> 00:18:36.570
didn’t realize maybe she did but at the
00:18:34.890 –> 00:18:40.679
time what she was doing was creating
00:18:36.570 –> 00:18:42.299
this basically this community for people
00:18:40.679 –> 00:18:44.090
that have celiac disease or children
00:18:42.299 –> 00:18:46.620
with celiac disease to all come together
00:18:44.090 –> 00:18:49.679
for this fundraiser and into this huge
00:18:46.620 –> 00:18:51.720
event in Kansas City and theirs vendors
00:18:49.679 –> 00:18:53.820
and there’s looting free food and it’s
00:18:51.720 –> 00:18:56.640
just all these people can connect with
00:18:53.820 –> 00:18:59.400
each other and just having that space
00:18:56.640 –> 00:19:00.900
and having that community was huge for
00:18:59.400 –> 00:19:02.880
me especially you know after being
00:19:00.900 –> 00:19:05.640
diagnosed just a year ago is whenever I
00:19:02.880 –> 00:19:07.410
first got connected with them and
00:19:05.640 –> 00:19:09.720
actually what it was there was like a
00:19:07.410 –> 00:19:12.809
little handout and a gluten-free Bakery
00:19:09.720 –> 00:19:14.940
that was kind of local and so I picked
00:19:12.809 –> 00:19:17.190
it up not having any idea where it would
00:19:14.940 –> 00:19:19.230
take me in the next year and a half but
00:19:17.190 –> 00:19:21.059
I you know I looked them up on Facebook
00:19:19.230 –> 00:19:23.250
added them there and they were looking
00:19:21.059 –> 00:19:25.500
for a photographer and I do photography
00:19:23.250 –> 00:19:26.700
on the side so it’s like you know reach
00:19:25.500 –> 00:19:28.559
out to them and I was like for sure I
00:19:26.700 –> 00:19:30.090
was like you know I’d love to shoot for
00:19:28.559 –> 00:19:33.299
you guys I’d love to help out whatever I
00:19:30.090 –> 00:19:35.790
can and so that was you know almost a
00:19:33.299 –> 00:19:37.679
year ago now on the fall and then I
00:19:35.790 –> 00:19:40.169
didn’t realize that you know now I would
00:19:37.679 –> 00:19:42.450
be you know on the volunteer team that
00:19:40.169 –> 00:19:44.580
you know helps plan it and helps do all
00:19:42.450 –> 00:19:46.860
these other things so but really the
00:19:44.580 –> 00:19:49.110
biggest part about it was is just having
00:19:46.860 –> 00:19:50.730
that community and having that almost
00:19:49.110 –> 00:19:52.140
like a family that you know everybody
00:19:50.730 –> 00:19:54.299
has celiac disease and they all know
00:19:52.140 –> 00:19:56.070
where you’re coming from so I feel like
00:19:54.299 –> 00:19:57.929
that made me so much more confident in
00:19:56.070 –> 00:19:59.400
it just knowing how many other people
00:19:57.929 –> 00:20:00.630
were out there and seeing these people
00:19:59.400 –> 00:20:02.910
face-to-face and hearing their
00:20:00.630 –> 00:20:05.549
challenges just made it so much easier
00:20:02.910 –> 00:20:06.540
than just doing it by yourself that is
00:20:05.549 –> 00:20:07.980
incredible
00:20:06.540 –> 00:20:09.660
you know you think like what are the
00:20:07.980 –> 00:20:11.610
chances that you’re in that bakery and
00:20:09.660 –> 00:20:13.980
you saw that fire that day and it had
00:20:11.610 –> 00:20:15.660
that you know it’s just exactly and if
00:20:13.980 –> 00:20:19.020
they needed a photographer like that’s
00:20:15.660 –> 00:20:20.610
just that’s incredible you were totally
00:20:19.020 –> 00:20:22.440
just meant to link up with them and I
00:20:20.610 –> 00:20:27.179
love that and I love when people are
00:20:22.440 –> 00:20:29.820
doing something about making change just
00:20:27.179 –> 00:20:34.770
not only their lives but to help others
00:20:29.820 –> 00:20:35.430
and I think that that’s so crazy because
00:20:34.770 –> 00:20:37.500
from
00:20:35.430 –> 00:20:39.809
you know the first year it was just a 5k
00:20:37.500 –> 00:20:42.330
in Kansas City and this year it grew to
00:20:39.809 –> 00:20:43.590
three cities it was in Philadelphia and
00:20:42.330 –> 00:20:45.360
it’s gonna be in Dallas and it’s gonna
00:20:43.590 –> 00:20:47.430
be in Kansas City again this fall but
00:20:45.360 –> 00:20:48.960
it’s just it’s just growing and growing
00:20:47.430 –> 00:20:51.030
because there’s so many people out there
00:20:48.960 –> 00:20:52.320
that want to have this event and to
00:20:51.030 –> 00:20:53.820
bring all these people together to raise
00:20:52.320 –> 00:20:55.559
money and especially awareness for
00:20:53.820 –> 00:20:57.540
celiac disease so it’s so cool that I
00:20:55.559 –> 00:20:59.730
was able to be a part of it you know in
00:20:57.540 –> 00:21:02.070
the growing years so that’s another
00:20:59.730 –> 00:21:04.320
thing that I’m super excited about that
00:21:02.070 –> 00:21:06.150
is awesome I love that we need one in
00:21:04.320 –> 00:21:09.410
California so make that one happen okay
00:21:06.150 –> 00:21:15.179
okay I’ll show up with my posse
00:21:09.410 –> 00:21:17.100
my four little kids this podcast is
00:21:15.179 –> 00:21:20.250
sponsored and brought to you by the
00:21:17.100 –> 00:21:21.900
celiac coach eCourse do you love how you
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feel when you listen to this gluten free
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wish I could start at the beginning and
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journey well I have spent countless
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hours to help you find your gluten free
00:21:32.610 –> 00:21:37.530
groove with the celiac OG course I will
00:21:35.700 –> 00:21:39.990
be teaching sharing and guiding you
00:21:37.530 –> 00:21:41.580
through the tough emotions what to do
00:21:39.990 –> 00:21:44.490
when a family member or friend doesn’t
00:21:41.580 –> 00:21:47.160
understand what an everyday celiac life
00:21:44.490 –> 00:21:50.280
looks like how to successfully travel
00:21:47.160 –> 00:21:52.020
with celiac disease and so much more to
00:21:50.280 –> 00:21:54.570
learn more about the e course head on
00:21:52.020 –> 00:21:56.970
over to serving celiacs comm and get
00:21:54.570 –> 00:21:59.730
started today and because you are tuning
00:21:56.970 –> 00:22:02.580
in here in this podcast today I am
00:21:59.730 –> 00:22:06.120
offering you 20% off the entire course
00:22:02.580 –> 00:22:08.780
by using the code podcast 20 and now
00:22:06.120 –> 00:22:09.990
back to our podcast message
00:22:08.780 –> 00:22:12.000
[Music]
00:22:09.990 –> 00:22:14.940
let’s talk about your getting into
00:22:12.000 –> 00:22:18.270
college and really break that process
00:22:14.940 –> 00:22:19.830
down as far as like who do you call who
00:22:18.270 –> 00:22:22.440
do you contact like how do you know if
00:22:19.830 –> 00:22:25.169
your school is celiac friendly or you
00:22:22.440 –> 00:22:26.730
know gluten free 100% or how what
00:22:25.169 –> 00:22:29.669
measures do you take what does that look
00:22:26.730 –> 00:22:33.240
like okay so going into college I
00:22:29.669 –> 00:22:35.940
actually had no idea how I was gonna do
00:22:33.240 –> 00:22:38.340
this I really didn’t but when I got to
00:22:35.940 –> 00:22:40.799
campus the first person and it’s a super
00:22:38.340 –> 00:22:42.779
great place to start almost every school
00:22:40.799 –> 00:22:45.570
has like a student life department or
00:22:42.779 –> 00:22:46.620
something very similar so I set up a
00:22:45.570 –> 00:22:50.130
meeting with the Director of Student
00:22:46.620 –> 00:22:50.640
Life and she put me you know semi in the
00:22:50.130 –> 00:22:52.470
right direction
00:22:50.640 –> 00:22:53.880
so I would you know have everybody
00:22:52.470 –> 00:22:56.789
that’s going to college if you don’t
00:22:53.880 –> 00:22:59.730
know where to start start there but then
00:22:56.789 –> 00:23:02.610
I quickly learned that especially for
00:22:59.730 –> 00:23:04.039
people with celiac disease a DA which
00:23:02.610 –> 00:23:08.039
chance for Americans with this
00:23:04.039 –> 00:23:09.870
Disability Act what that is is most
00:23:08.039 –> 00:23:12.059
college I think actually all college
00:23:09.870 –> 00:23:15.000
campuses have an ad a wreck
00:23:12.059 –> 00:23:16.980
so what their job is to do is just you
00:23:15.000 –> 00:23:18.149
know students with disabilities to make
00:23:16.980 –> 00:23:21.240
sure that they’re getting the best
00:23:18.149 –> 00:23:23.010
college experience that came possible so
00:23:21.240 –> 00:23:26.279
just recently actually I think the last
00:23:23.010 –> 00:23:28.980
five years or less celiac disease has
00:23:26.279 –> 00:23:31.590
fallen under this category so now the
00:23:28.980 –> 00:23:33.750
rep on campus is there to also help me
00:23:31.590 –> 00:23:36.690
make sure that I have the best college
00:23:33.750 –> 00:23:39.330
experience and I do know I’m eating what
00:23:36.690 –> 00:23:41.070
I can and whatever it may look like so
00:23:39.330 –> 00:23:43.110
for me you know we sat down we had this
00:23:41.070 –> 00:23:45.510
meeting I was super lucky that my rep
00:23:43.110 –> 00:23:48.149
was pretty knowledgeable about celiac
00:23:45.510 –> 00:23:51.299
disease so what we decided you know and
00:23:48.149 –> 00:23:53.520
we create our own plan so what my plan
00:23:51.299 –> 00:23:54.899
looked like was I was set up to have a
00:23:53.520 –> 00:23:57.299
double room so I was gonna have a
00:23:54.899 –> 00:23:59.640
roommate we decided that would be since
00:23:57.299 –> 00:24:01.140
I’m very sensitive you know I get break
00:23:59.640 –> 00:24:03.330
out on my skin when I come in contact
00:24:01.140 –> 00:24:05.760
and I’m super too susceptible to cross
00:24:03.330 –> 00:24:09.120
contact so what we decided we would do
00:24:05.760 –> 00:24:11.970
is put me in a single room so I actually
00:24:09.120 –> 00:24:13.950
got my own room and then of course it
00:24:11.970 –> 00:24:16.970
was the expenses were cut because I was
00:24:13.950 –> 00:24:16.970
through the 88 plan
00:24:17.020 –> 00:24:23.260
was had a sit-down meeting with the food
00:24:19.840 –> 00:24:24.490
service company you know her and I we
00:24:23.260 –> 00:24:26.800
just explained it to them we’re like
00:24:24.490 –> 00:24:28.120
this is what celiac disease is this is
00:24:26.800 –> 00:24:30.910
why it’s so important this is what
00:24:28.120 –> 00:24:32.710
lutein is and then basically at the end
00:24:30.910 –> 00:24:34.000
of this meeting I just told them I was
00:24:32.710 –> 00:24:35.940
like so if you guys think you could
00:24:34.000 –> 00:24:39.460
provide food safe enough for me to eat
00:24:35.940 –> 00:24:41.020
and not be sick and you know eat out of
00:24:39.460 –> 00:24:42.460
this cafeteria everyday and what we
00:24:41.020 –> 00:24:44.380
decided was I actually probably
00:24:42.460 –> 00:24:45.940
shouldn’t be eating there because they
00:24:44.380 –> 00:24:47.020
just didn’t feel comfortable enough and
00:24:45.940 –> 00:24:49.210
they didn’t feel like they had the
00:24:47.020 –> 00:24:51.820
resources to make sure that I was gonna
00:24:49.210 –> 00:24:54.700
be you know safe eating out of the
00:24:51.820 –> 00:24:57.220
cafeteria without getting sick so then
00:24:54.700 –> 00:24:59.290
the next step we did was they exempted
00:24:57.220 –> 00:25:01.059
me from the meal plan which you know
00:24:59.290 –> 00:25:02.770
it’s very uncommon for freshmen because
00:25:01.059 –> 00:25:05.890
they almost all are on a freshman meal
00:25:02.770 –> 00:25:09.220
plan but through a TA we I became exempt
00:25:05.890 –> 00:25:13.240
on the meal plan and then from there the
00:25:09.220 –> 00:25:14.530
last thing was we set up this is kind of
00:25:13.240 –> 00:25:16.120
basically just a letter for every
00:25:14.530 –> 00:25:18.490
professor I have and what this letter
00:25:16.120 –> 00:25:21.640
says is you know it’s addressed from the
00:25:18.490 –> 00:25:25.210
ATA rep on campus and then what it says
00:25:21.640 –> 00:25:27.700
is just I will be excused from classes
00:25:25.210 –> 00:25:29.710
if I’m symptomatic if I get gluten if
00:25:27.700 –> 00:25:31.390
I’m sick because Sicilia disease if I’m
00:25:29.710 –> 00:25:33.100
you know whatever if it’s associated
00:25:31.390 –> 00:25:35.320
with that then I’ll be exempt from class
00:25:33.100 –> 00:25:37.510
and all I have to do is give them this
00:25:35.320 –> 00:25:39.640
letter on the first day of classes and
00:25:37.510 –> 00:25:41.950
then from there just you know stay in
00:25:39.640 –> 00:25:43.390
good contact through email luckily
00:25:41.950 –> 00:25:46.570
enough I never missed class last
00:25:43.390 –> 00:25:48.340
semester because of being gluten so that
00:25:46.570 –> 00:25:49.690
was awesome of course but it wouldn’t
00:25:48.340 –> 00:25:52.330
you know is definitely not without
00:25:49.690 –> 00:25:54.580
having this meeting with the ATA rep on
00:25:52.330 –> 00:25:56.920
campus and doing all these things to
00:25:54.580 –> 00:26:02.200
ensure that I will be taken care of
00:25:56.920 –> 00:26:06.580
oh I love that yeah actually the class
00:26:02.200 –> 00:26:09.730
that aired today we’re recording this is
00:26:06.580 –> 00:26:12.910
a 504 plan that I’ve created with my
00:26:09.730 –> 00:26:15.070
kids school and I love that and it’s
00:26:12.910 –> 00:26:17.080
like it’s just wonderful to have people
00:26:15.070 –> 00:26:19.480
advocating for you and just feeling
00:26:17.080 –> 00:26:21.760
heard and like this is the process this
00:26:19.480 –> 00:26:24.010
is like the stepping stone to get to who
00:26:21.760 –> 00:26:26.610
you need to get to and like what a
00:26:24.010 –> 00:26:29.160
blessing and what a miracle and
00:26:26.610 –> 00:26:33.750
impressed you didn’t utilize that you
00:26:29.160 –> 00:26:36.660
can skip class yeah freshmen I don’t
00:26:33.750 –> 00:26:38.370
know if I want a bit now responsible it
00:26:36.660 –> 00:26:43.230
might have been sick during a final or
00:26:38.370 –> 00:26:44.790
something I don’t know so bad if I miss
00:26:43.230 –> 00:26:47.220
class or something I’m like oh I’m gonna
00:26:44.790 –> 00:26:53.460
do something super important you are
00:26:47.220 –> 00:26:55.980
good good okay so that’s awesome I love
00:26:53.460 –> 00:26:57.960
that you got to have your own single
00:26:55.980 –> 00:27:00.980
room I think that’s huge and you didn’t
00:26:57.960 –> 00:27:03.900
have to pay the price for that great
00:27:00.980 –> 00:27:06.000
protection that is that’s good
00:27:03.900 –> 00:27:08.130
and I also loved when you were saying
00:27:06.000 –> 00:27:09.720
about the cafeteria they could have well
00:27:08.130 –> 00:27:11.429
said like oh yeah we’ll make sure you
00:27:09.720 –> 00:27:12.870
know and then but can you really trust
00:27:11.429 –> 00:27:14.630
them that they were open enough to say
00:27:12.870 –> 00:27:17.820
you know what honestly we can’t and we
00:27:14.630 –> 00:27:19.110
would way rather have honesty if you’re
00:27:17.820 –> 00:27:22.559
a college out there we would way rather
00:27:19.110 –> 00:27:27.900
I wanted then to fake it right we can’t
00:27:22.559 –> 00:27:29.669
take it you know every school is
00:27:27.900 –> 00:27:32.429
different so I go to a very small
00:27:29.669 –> 00:27:34.169
private school in Kansas so it’s gonna
00:27:32.429 –> 00:27:35.970
look different everywhere you go cuz I
00:27:34.169 –> 00:27:37.530
know I’ve seen a few articles and stuff
00:27:35.970 –> 00:27:39.960
now that I’m kind of trying to submerge
00:27:37.530 –> 00:27:42.750
myself in this community where I can’t
00:27:39.960 –> 00:27:45.030
remember a school up north Michigan one
00:27:42.750 –> 00:27:47.730
of those schools up there you know are
00:27:45.030 –> 00:27:50.400
making huge leaps and bounds to being
00:27:47.730 –> 00:27:52.110
able to provide for their students that
00:27:50.400 –> 00:27:54.450
have celiac disease and gluten free
00:27:52.110 –> 00:27:56.910
needs so it just depends on the school
00:27:54.450 –> 00:27:59.460
but I think you know if you are sending
00:27:56.910 –> 00:28:02.130
a child off that has celiac disease get
00:27:59.460 –> 00:28:03.600
in contact with your ad a rep get in
00:28:02.130 –> 00:28:05.700
contact with the food service whatever
00:28:03.600 –> 00:28:07.679
it may look like for you but there’s
00:28:05.700 –> 00:28:09.510
definitely people on campus that know
00:28:07.679 –> 00:28:11.880
the answer it might just take some time
00:28:09.510 –> 00:28:13.770
finding that person that has the answer
00:28:11.880 –> 00:28:15.690
but they’re definitely there they’re
00:28:13.770 –> 00:28:17.220
definitely there to help so but
00:28:15.690 –> 00:28:18.990
definitely do your research and do your
00:28:17.220 –> 00:28:20.910
phone calls and emailing probably before
00:28:18.990 –> 00:28:23.190
classes start that’s what I did and that
00:28:20.910 –> 00:28:26.160
made it way easier that’s a good tip
00:28:23.190 –> 00:28:28.950
very good tip awesome okay so you
00:28:26.160 –> 00:28:29.610
mentioned that you play basketball yes I
00:28:28.950 –> 00:28:31.679
do
00:28:29.610 –> 00:28:34.640
so that is awesome but there’s a lot of
00:28:31.679 –> 00:28:36.840
traveling that goes with that right
00:28:34.640 –> 00:28:38.610
that workout with your team I mean
00:28:36.840 –> 00:28:40.020
you’re with a bunch of guys who are just
00:28:38.610 –> 00:28:41.280
like trying to make it to their next
00:28:40.020 –> 00:28:43.530
meal until the bus takes you wherever
00:28:41.280 –> 00:28:46.799
how do you prepare how do you handle
00:28:43.530 –> 00:28:49.200
situations like that um so you kind of
00:28:46.799 –> 00:28:51.570
have to just know where you’re going so
00:28:49.200 –> 00:28:53.970
like if I knew we were playing in a big
00:28:51.570 –> 00:28:56.690
city then like I was gonna be okay with
00:28:53.970 –> 00:28:59.429
you know because we usually take bands
00:28:56.690 –> 00:29:01.020
instead of a big bus it just depends
00:28:59.429 –> 00:29:05.549
when where we’re going or when we’re
00:29:01.020 –> 00:29:07.020
going what it is whatever but uh if I
00:29:05.549 –> 00:29:09.090
didn’t know where we were going I always
00:29:07.020 –> 00:29:10.919
keep staples in my backpack so like I
00:29:09.090 –> 00:29:13.860
always throw in like a peanut butter and
00:29:10.919 –> 00:29:16.650
honey sandwich or two or three and nine
00:29:13.860 –> 00:29:18.450
bars and then water like I always have
00:29:16.650 –> 00:29:20.730
that on me and that always there was
00:29:18.450 –> 00:29:22.770
never time that I didn’t feel like I
00:29:20.730 –> 00:29:26.789
just you know absolutely needed to eat
00:29:22.770 –> 00:29:28.530
or whatever and having those staples in
00:29:26.789 –> 00:29:30.990
my backpack definitely made it way
00:29:28.530 –> 00:29:32.730
easier because if we did you know if the
00:29:30.990 –> 00:29:35.490
only place to stop is McDonald’s I’m not
00:29:32.730 –> 00:29:36.659
gonna eat there I mean I guess I
00:29:35.490 –> 00:29:38.159
probably could have got a salad or
00:29:36.659 –> 00:29:43.169
something but I’m not gonna get a salad
00:29:38.159 –> 00:29:44.700
after a game so but I you know I would
00:29:43.169 –> 00:29:46.340
just eat with the team I just pull it
00:29:44.700 –> 00:29:49.080
out of my backpack I’d eat with the team
00:29:46.340 –> 00:29:51.270
and then I would be full enough by the
00:29:49.080 –> 00:29:53.520
time I got back to my dorm I would try
00:29:51.270 –> 00:29:55.620
to always have like you know a good meal
00:29:53.520 –> 00:29:57.539
like waiting for me when I got back that
00:29:55.620 –> 00:30:00.539
I could just pop in my microwave in
00:29:57.539 –> 00:30:02.309
after the game awesome
00:30:00.539 –> 00:30:04.230
yeah that’s a big deal and then what
00:30:02.309 –> 00:30:05.730
about the other guys do they get it do
00:30:04.230 –> 00:30:08.880
you get do you do they give you some
00:30:05.730 –> 00:30:12.210
hard time they get it took them a while
00:30:08.880 –> 00:30:13.740
to kind of understand you know and it
00:30:12.210 –> 00:30:15.090
just depends on who your teammates are
00:30:13.740 –> 00:30:17.520
of course too because like one of my
00:30:15.090 –> 00:30:18.630
friends his mom has celiac disease one
00:30:17.520 –> 00:30:20.220
of my really good friends from the
00:30:18.630 –> 00:30:23.039
basketball team and he lives kind of
00:30:20.220 –> 00:30:24.840
close to our campus so you know it’s
00:30:23.039 –> 00:30:27.840
kind of fun funny though because like I
00:30:24.840 –> 00:30:29.940
know I can go to their house I want
00:30:27.840 –> 00:30:32.490
because she is you know gluten free too
00:30:29.940 –> 00:30:33.659
so its you just never know who you’re
00:30:32.490 –> 00:30:35.220
gonna run into and make those
00:30:33.659 –> 00:30:37.530
connections with because it’s so fun
00:30:35.220 –> 00:30:40.020
just be able to you know go to his house
00:30:37.530 –> 00:30:41.820
whenever I want you know and hang out
00:30:40.020 –> 00:30:44.549
and whatever and I know that there will
00:30:41.820 –> 00:30:46.780
be food there for me to eat safely what
00:30:44.549 –> 00:30:50.860
a blessing I bet mom
00:30:46.780 –> 00:30:52.690
really happy to yeah that’s really good
00:30:50.860 –> 00:30:55.120
okay so as a whole like how do you
00:30:52.690 –> 00:30:57.610
handle social situations off in college
00:30:55.120 –> 00:30:59.680
you like you go hang out with friends or
00:30:57.610 –> 00:31:02.170
there’s a party or something and like
00:30:59.680 –> 00:31:06.850
how do you how do you handle those and
00:31:02.170 –> 00:31:10.180
do tell everyone first year um every
00:31:06.850 –> 00:31:11.610
social situation is different so like
00:31:10.180 –> 00:31:15.010
let’s say if it’s centered around food
00:31:11.610 –> 00:31:16.450
and if it’s appropriate I don’t always
00:31:15.010 –> 00:31:17.950
do this you know if it’s a dinner or
00:31:16.450 –> 00:31:20.440
something of course I can’t do this but
00:31:17.950 –> 00:31:22.780
if it’s appropriate I’ll go like 10 or
00:31:20.440 –> 00:31:24.160
15 minutes later after it starts because
00:31:22.780 –> 00:31:25.930
that’s usually when they eat the food
00:31:24.160 –> 00:31:27.640
so I’ll get there a little bit later and
00:31:25.930 –> 00:31:28.780
they’ll be almost any eating so then
00:31:27.640 –> 00:31:31.480
it’s not you know there’s not as much
00:31:28.780 –> 00:31:33.640
pressure on me to eat with them or to
00:31:31.480 –> 00:31:35.500
try and find something to eat there so
00:31:33.640 –> 00:31:38.800
that just makes it easier on me to do it
00:31:35.500 –> 00:31:40.960
that way if it is centered around food
00:31:38.800 –> 00:31:42.880
then I usually you know try to get in
00:31:40.960 –> 00:31:44.530
contact with whoever it’s planning it or
00:31:42.880 –> 00:31:45.550
like whatever group is sponsoring it and
00:31:44.530 –> 00:31:48.400
see if there’s gonna be gluten-free
00:31:45.550 –> 00:31:50.110
options there and if there’s not and you
00:31:48.400 –> 00:31:52.390
know I usually eat before I go with
00:31:50.110 –> 00:31:55.300
anyway I mean I say that but I could
00:31:52.390 –> 00:31:56.800
definitely eat two meals so it’s not if
00:31:55.300 –> 00:32:00.220
they do or don’t have food because I
00:31:56.800 –> 00:32:03.370
always eat beforehand yeah but like if
00:32:00.220 –> 00:32:05.500
it’s like a party for example I’m not
00:32:03.370 –> 00:32:07.150
gonna sit down and explain celiac
00:32:05.500 –> 00:32:09.760
disease to every single person that like
00:32:07.150 –> 00:32:12.310
asked me to you know take a drink of
00:32:09.760 –> 00:32:14.230
something or like eat something like I’m
00:32:12.310 –> 00:32:17.080
just not going to when I go to parties
00:32:14.230 –> 00:32:20.200
I don’t eat or drink anything I usually
00:32:17.080 –> 00:32:22.480
have my water with me and that’s you
00:32:20.200 –> 00:32:23.970
know my go-to but it’s super easy
00:32:22.480 –> 00:32:26.560
because I’ve learned there’s other ways
00:32:23.970 –> 00:32:28.030
than just saying no cuz you’re gonna run
00:32:26.560 –> 00:32:30.220
into those people that are like oh just
00:32:28.030 –> 00:32:31.960
take one drink just just come on it’s
00:32:30.220 –> 00:32:34.270
not gonna hurt you hablo and literally
00:32:31.960 –> 00:32:39.160
they know like yeah it’s gonna hurt me
00:32:34.270 –> 00:32:42.880
more than you even a man so some of the
00:32:39.160 –> 00:32:44.200
tools I use is like you know like oh you
00:32:42.880 –> 00:32:46.330
know you never know it’s probably gonna
00:32:44.200 –> 00:32:48.790
be alcohol and their cuff anyway so I
00:32:46.330 –> 00:32:50.920
usually just say you know I’m the DD
00:32:48.790 –> 00:32:53.140
tonight like I’m the responsible one
00:32:50.920 –> 00:32:55.190
like I’m not like I have my water I’m
00:32:53.140 –> 00:32:57.649
good like stuff like that
00:32:55.190 –> 00:32:59.000
and a lot of times you know I’ve been I
00:32:57.649 –> 00:33:00.649
feel like I’ve been lucky because most
00:32:59.000 –> 00:33:01.850
of the situations I’ve been in just a
00:33:00.649 –> 00:33:05.720
simple no thank you
00:33:01.850 –> 00:33:06.919
works better than anything and yeah you
00:33:05.720 –> 00:33:08.570
know because a lot of times these
00:33:06.919 –> 00:33:09.980
situations are going to be you know
00:33:08.570 –> 00:33:11.539
there’s going to be music and it’s gonna
00:33:09.980 –> 00:33:12.500
be really loud or something there’s
00:33:11.539 –> 00:33:15.440
gonna be a lot of people talking
00:33:12.500 –> 00:33:16.940
whatever you’re not gonna sit there and
00:33:15.440 –> 00:33:18.409
explain to them what Luton is and what
00:33:16.940 –> 00:33:21.049
cross contact is and all this and that
00:33:18.409 –> 00:33:22.669
yeah it’s just easier to say you know
00:33:21.049 –> 00:33:24.590
thank you a lot of the time just fitting
00:33:22.669 –> 00:33:28.100
on the situation especially like parties
00:33:24.590 –> 00:33:31.750
and stuff like that absolutely yeah that
00:33:28.100 –> 00:33:34.970
is that’s a very true very true
00:33:31.750 –> 00:33:36.289
so Clayton tell us more about what
00:33:34.970 –> 00:33:38.120
you’re doing right now what are you
00:33:36.289 –> 00:33:40.519
working on what’s what’s keeping you
00:33:38.120 –> 00:33:45.740
excited about your celiac in college
00:33:40.519 –> 00:33:47.840
College and celiac I should say projects
00:33:45.740 –> 00:33:50.179
going right now my first one is I just
00:33:47.840 –> 00:33:52.100
actually started a YouTube channel I’m
00:33:50.179 –> 00:33:54.399
gonna try to use that platform the first
00:33:52.100 –> 00:33:57.289
series is going to be cooking videos
00:33:54.399 –> 00:33:59.149
I’ve already made a few that I’m gonna
00:33:57.289 –> 00:34:01.909
post periodically you know closer to
00:33:59.149 –> 00:34:03.950
school time I have one up it’s a super
00:34:01.909 –> 00:34:05.960
short just like intro to like some of
00:34:03.950 –> 00:34:09.770
the staples in my kitchen this was super
00:34:05.960 –> 00:34:11.359
short video and I hope to you know post
00:34:09.770 –> 00:34:13.250
more videos during the school year like
00:34:11.359 –> 00:34:15.379
this is a typical day for me and like
00:34:13.250 –> 00:34:17.599
you know navigating these social
00:34:15.379 –> 00:34:20.060
situations and whatever it may be but my
00:34:17.599 –> 00:34:21.169
youtube channel is collagen celiac it’s
00:34:20.060 –> 00:34:22.460
the same thing and also I’m super
00:34:21.169 –> 00:34:24.679
excited for that so you can check that
00:34:22.460 –> 00:34:26.740
out and the second thing that I’m
00:34:24.679 –> 00:34:29.389
working on right now is producing
00:34:26.740 –> 00:34:31.220
newsletters each month so I actually
00:34:29.389 –> 00:34:32.569
just sent out my first monthly
00:34:31.220 –> 00:34:36.649
newsletter this month
00:34:32.569 –> 00:34:39.050
this being July yeah and so next month
00:34:36.649 –> 00:34:41.089
in August I’ll send out my next one
00:34:39.050 –> 00:34:42.230
right now I don’t have a platform where
00:34:41.089 –> 00:34:43.609
you can just like go and leave your
00:34:42.230 –> 00:34:47.149
email so right now I’m just working
00:34:43.609 –> 00:34:49.480
slowly through my Instagram page and my
00:34:47.149 –> 00:34:52.909
Instagram page is just collagen celiac
00:34:49.480 –> 00:34:55.069
simple easy you can find me there and
00:34:52.909 –> 00:34:57.020
like I tell everyone my dams are always
00:34:55.069 –> 00:34:59.119
open I love answering questions and
00:34:57.020 –> 00:35:00.420
talking to people so but yeah those are
00:34:59.119 –> 00:35:02.160
my two projects I’m working
00:35:00.420 –> 00:35:05.279
right now and I’m super excited about to
00:35:02.160 –> 00:35:06.809
help you know keep making these
00:35:05.279 –> 00:35:08.670
platforms in different ways to help
00:35:06.809 –> 00:35:11.460
college students and parents sending
00:35:08.670 –> 00:35:14.549
their child to college that is so
00:35:11.460 –> 00:35:15.990
important I love that because when we
00:35:14.549 –> 00:35:18.180
were diagnosed I’m like okay well what
00:35:15.990 –> 00:35:20.130
does that look like I I text everybody I
00:35:18.180 –> 00:35:22.230
knew that had like the a gluten-free or
00:35:20.130 –> 00:35:23.910
had celiac disease and I’m like or that
00:35:22.230 –> 00:35:25.980
knew someone if somebody like I’m just
00:35:23.910 –> 00:35:28.500
like you let me a picture of what your
00:35:25.980 –> 00:35:32.039
pantry looks like what’s in your fridge
00:35:28.500 –> 00:35:36.029
like I just needed this see I don’t know
00:35:32.039 –> 00:35:37.859
what this looks like so going out to
00:35:36.029 –> 00:35:39.869
college is already intimidating and
00:35:37.859 –> 00:35:41.400
scary as it is and then you throw on
00:35:39.869 –> 00:35:44.519
like okay now you need to be gluten free
00:35:41.400 –> 00:35:47.309
and it’s like ah so having this visual
00:35:44.519 –> 00:35:49.109
in a youtube format is so perfect in a
00:35:47.309 –> 00:35:51.569
video and so that is really really
00:35:49.109 –> 00:35:54.170
exciting I hope you really remember to
00:35:51.569 –> 00:35:57.329
keep posting throughout the year cuz
00:35:54.170 –> 00:35:59.220
absolutely that’s needed radar because
00:35:57.329 –> 00:36:01.559
you know and whenever I was you know
00:35:59.220 –> 00:36:03.089
kind of trying to think about my next
00:36:01.559 –> 00:36:05.759
project that I was going to try to work
00:36:03.089 –> 00:36:07.500
on YouTube was kind of the easy answer
00:36:05.759 –> 00:36:09.210
because I love you too you know everyone
00:36:07.500 –> 00:36:10.890
I’ve ever met in college they love you
00:36:09.210 –> 00:36:13.079
too everyone has their favorite youtuber
00:36:10.890 –> 00:36:15.750
I’m not saying I’m gonna be like the
00:36:13.079 –> 00:36:17.130
next youtuber out there but I thought it
00:36:15.750 –> 00:36:19.980
would be another really good platform to
00:36:17.130 –> 00:36:22.380
kind of use utilize and show people what
00:36:19.980 –> 00:36:26.160
life is being College and celiac for
00:36:22.380 –> 00:36:28.470
sure yes absolutely clean you’re awesome
00:36:26.160 –> 00:36:31.079
we’re having so many amazing things
00:36:28.470 –> 00:36:32.849
already and you’re a sophomore imagine
00:36:31.079 –> 00:36:34.819
what is gonna transpire by your senior
00:36:32.849 –> 00:36:37.470
year and I hope so
00:36:34.819 –> 00:36:40.700
you’re awesome so thank you for taking
00:36:37.470 –> 00:36:44.339
the time out of your busy to hop on
00:36:40.700 –> 00:36:45.990
spread more awareness for sending kids
00:36:44.339 –> 00:36:48.539
off to college because that’s exactly
00:36:45.990 –> 00:36:50.640
what a lot of moms and dads are freaking
00:36:48.539 –> 00:36:52.740
out right now sending their child away
00:36:50.640 –> 00:36:56.039
to college with celiac disease so you
00:36:52.740 –> 00:36:58.500
are a perfect example of what we all
00:36:56.039 –> 00:37:00.230
hope our children will be when they go
00:36:58.500 –> 00:37:02.910
off to college
00:37:00.230 –> 00:37:04.380
okay do you have any takeaway do you
00:37:02.910 –> 00:37:07.380
have a takeaway that you’re like I want
00:37:04.380 –> 00:37:08.130
everybody to know this um yeah I do
00:37:07.380 –> 00:37:10.950
actually
00:37:08.130 –> 00:37:12.370
um actually you told me to have one
00:37:10.950 –> 00:37:17.800
takeaway I actually kind of
00:37:12.370 –> 00:37:20.230
so we love toys but my takeaways would
00:37:17.800 –> 00:37:21.460
definitely be a positive attitude will
00:37:20.230 –> 00:37:22.090
get you further in life than you can
00:37:21.460 –> 00:37:23.800
even imagine
00:37:22.090 –> 00:37:25.810
because that’s one thing that I try to
00:37:23.800 –> 00:37:28.450
be you know the most positive person in
00:37:25.810 –> 00:37:30.070
the room no matter where I go you know
00:37:28.450 –> 00:37:32.380
whether it be when I’m showing up to
00:37:30.070 –> 00:37:34.180
class showing up you know to practice
00:37:32.380 –> 00:37:36.310
and that’s one thing that actually you
00:37:34.180 –> 00:37:37.540
know one of those feel-good moments that
00:37:36.310 –> 00:37:39.670
you don’t even think about that you have
00:37:37.540 –> 00:37:42.310
with yourself and the end-of-the-year
00:37:39.670 –> 00:37:43.690
meeting with my coaches that’s what my
00:37:42.310 –> 00:37:45.520
coaches had to say they’re like you know
00:37:43.690 –> 00:37:47.380
what you were that guy that always had a
00:37:45.520 –> 00:37:49.840
smile on his face showed up ready to
00:37:47.380 –> 00:37:51.850
work and just you know had that positive
00:37:49.840 –> 00:37:53.650
attitude and you know just hearing them
00:37:51.850 –> 00:37:56.140
say that that kind of you know RIA you
00:37:53.650 –> 00:37:57.610
know Reese Park that in me to be that
00:37:56.140 –> 00:38:00.030
person and to be that positive attitude
00:37:57.610 –> 00:38:02.680
everywhere I go so that’s so important
00:38:00.030 –> 00:38:04.870
the next one is just finding your why
00:38:02.680 –> 00:38:07.360
like when I get up in the morning like
00:38:04.870 –> 00:38:10.420
what is my why like what is my purpose
00:38:07.360 –> 00:38:13.240
you actually on a phone call ask me what
00:38:10.420 –> 00:38:15.220
my purpose was starting this brand in
00:38:13.240 –> 00:38:16.750
that honestly like I think about that a
00:38:15.220 –> 00:38:20.770
lot more than you probably even thought
00:38:16.750 –> 00:38:22.630
I would but I think about that and you
00:38:20.770 –> 00:38:24.220
know whatever whether it be it’s
00:38:22.630 –> 00:38:25.690
different for everybody so you know my
00:38:24.220 –> 00:38:26.950
why is gonna be different than your life
00:38:25.690 –> 00:38:29.560
course and it’s gonna be different for
00:38:26.950 –> 00:38:31.210
everybody but find your why that’s so
00:38:29.560 –> 00:38:33.880
important and then the last takeaway I
00:38:31.210 –> 00:38:35.680
have is going back to n you know my
00:38:33.880 –> 00:38:38.380
athletic background have that you know
00:38:35.680 –> 00:38:39.940
quote unquote hungry mentality so like
00:38:38.380 –> 00:38:41.320
getting up in the morning and just
00:38:39.940 –> 00:38:44.080
telling yourself you know I’m gonna be
00:38:41.320 –> 00:38:46.030
the best today I’m gonna be the best and
00:38:44.080 –> 00:38:47.800
whatever I’m doing so like when I get up
00:38:46.030 –> 00:38:50.530
I’m like I’m gonna be you know the best
00:38:47.800 –> 00:38:52.450
I can be in class when I’m going and
00:38:50.530 –> 00:38:54.820
taking notes and doing whatever I’m
00:38:52.450 –> 00:38:56.560
gonna be the best you know I can for
00:38:54.820 –> 00:38:57.880
called celiac on this you know on this
00:38:56.560 –> 00:39:00.010
platform I’m going to be the best that I
00:38:57.880 –> 00:39:02.260
can be in sharing my story or whatever
00:39:00.010 –> 00:39:04.090
it may be so having that hungry
00:39:02.260 –> 00:39:05.380
mentality I think is super important too
00:39:04.090 –> 00:39:07.600
and that’s just kind of my athletic
00:39:05.380 –> 00:39:09.640
background talking but I think those
00:39:07.600 –> 00:39:12.700
would be my takeaways for sure that’s
00:39:09.640 –> 00:39:14.350
fabulous you are positive you’re all the
00:39:12.700 –> 00:39:19.090
things that’s incredible you are the
00:39:14.350 –> 00:39:20.890
best like that is such a good reminder
00:39:19.090 –> 00:39:23.140
and sheesh you’ve learned life lessons
00:39:20.890 –> 00:39:24.600
at such a young age and I think that’s
00:39:23.140 –> 00:39:27.330
what comes with
00:39:24.600 –> 00:39:28.650
having trials there’s Slingbox things
00:39:27.330 –> 00:39:30.840
that try to throw you away you know
00:39:28.650 –> 00:39:32.490
throw you down and just being able to
00:39:30.840 –> 00:39:34.200
come up and conquer it and you
00:39:32.490 –> 00:39:36.210
definitely conquer you celiac disease so
00:39:34.200 –> 00:39:38.100
thank you so much for your example thank
00:39:36.210 –> 00:39:41.340
you for having me thank you so much I
00:39:38.100 –> 00:39:43.470
really enjoyed this Thanks well we all
00:39:41.340 –> 00:39:46.950
are less loving listening to you too so
00:39:43.470 –> 00:39:48.060
all right until next time yo until next
00:39:46.950 –> 00:39:50.820
time thank you
00:39:48.060 –> 00:39:52.530
thank you for tuning in today double
00:39:50.820 –> 00:39:54.300
check to make sure you subscribe to this
00:39:52.530 –> 00:39:57.060
podcast so that you don’t miss another
00:39:54.300 –> 00:39:59.460
episode and remember sharing is caring
00:39:57.060 –> 00:40:01.860
and one way you can help me and help
00:39:59.460 –> 00:40:03.960
this podcast reach the masses is by
00:40:01.860 –> 00:40:06.150
leaving a comment review to share with
00:40:03.960 –> 00:40:07.860
the world why all of our gluten-free
00:40:06.150 –> 00:40:10.980
friends need to be tuning in and
00:40:07.860 –> 00:40:13.230
listening along with us also do you have
00:40:10.980 –> 00:40:15.990
a favorite social media platform to
00:40:13.230 –> 00:40:17.940
Instagram YouTube Pinterest Facebook I
00:40:15.990 –> 00:40:18.570
want to see your gluten-free face there
00:40:17.940 –> 00:40:21.090
too
00:40:18.570 –> 00:40:23.820
so find me at serving celiacs wherever
00:40:21.090 –> 00:40:26.740
you like to hang out and go and have the
00:40:23.820 –> 00:40:33.150
best gluten-free day
00:40:26.740 –> 00:40:33.150
[Music]
